Wang Kai-Wei K, Lin Hung-Ching, Lee Chin-Ting, Lee Kuo-Sheng
Department of Nursing, Mackay Medical College, New Taipei City, Taiwan.
Department of Audiology and Speech Language Pathology, Mackay Medical College, New Taipei City, Taiwan.
J Adv Nurs. 2016 Jul;72(7):1592-601. doi: 10.1111/jan.12934. Epub 2016 Feb 22.
To identify the predictors of primary caregivers' stress in caring for in-home oxygen-dependent children by examining the association between their levels of stress, caregiver needs and social support.
Increasing numbers of primary caregivers of oxygen-dependent children experience caregiving stress that warrants investigation.
The study used a cross-sectional design with three psychometric scales - Modified-Parenting Stress Index, Caregiver Needs Scale and Social Support Index.
The data collected during 2010-2011 were from participants who were responsible for their child's care that included oxygen therapy for ≧6 hours/day; the children's ages ranged from 3 months-16 years. Descriptive statistics and multivariable linear regression were used.
A total of 104 participants (M = 34, F = 70) were recruited, with an average age of 39·7 years. The average age of the oxygen-dependent children was 6·68 years and their daily use of oxygen averaged 11·39 hours. The caregivers' overall levels of stress were scored as high and information needs were scored as the highest. The most available support from family and friends was emotional support. Informational support was mostly received from health professionals, but both instrumental and emotional support were important. Levels of stress and caregiver needs were significantly correlated. Multivariable linear regression analyses identified three risk factors predicting stress, namely, the caregiver's poor health status, the child's male gender and the caregiver's greater financial need.
To support these caregivers, health professionals can maintain their health status and provide instrumental, emotional, informational and financial support.
通过研究家庭中依赖氧气治疗儿童的主要照顾者的压力水平、照顾者需求和社会支持之间的关联，确定照顾者压力的预测因素。
越来越多依赖氧气治疗儿童的主要照顾者承受着照顾压力，这值得进行调查。
本研究采用横断面设计，使用了三个心理测量量表——修订版育儿压力指数、照顾者需求量表和社会支持指数。
2010 - 2011年收集的数据来自负责孩子护理（包括每天至少6小时氧气治疗）的参与者；孩子年龄在3个月至16岁之间。采用描述性统计和多变量线性回归分析。
共招募了104名参与者（男性34名，女性70名），平均年龄39.7岁。依赖氧气治疗儿童的平均年龄为6.68岁，他们每天平均吸氧11.39小时。照顾者的总体压力水平较高，信息需求得分最高。来自家人和朋友的最主要支持是情感支持。信息支持大多来自健康专业人员，但工具性支持和情感支持都很重要。压力水平与照顾者需求显著相关。多变量线性回归分析确定了预测压力的三个风险因素，即照顾者健康状况不佳、孩子为男性以及照顾者经济需求较大。
为了支持这些照顾者，健康专业人员可以维持他们的健康状况，并提供工具性、情感、信息和经济支持。
