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家庭成员或朋友参与有抑郁症状及共病慢性病患者的自我护理。

Family members' or friends' involvement in self-care for patients with depressive symptoms and co-morbid chronic conditions.

作者信息

Sussman Tamara, Mccusker Jane, Yaffe Mark, Belzile Eric, Sewitch Maida, Cole Martin, Strumpf Erin

机构信息

School of Social Work, McGill University, Montreal, QC, Canada

Department of Epidemiology, Biostatistics and Occupational Health, McGill University St Mary's Research Centre, Montreal, QC, Canada.

出版信息

Chronic Illn. 2016 Sep;12(3):182-98. doi: 10.1177/1742395316633510. Epub 2016 Mar 2.

Abstract

OBJECTIVES

To describe the support that patients reported receiving from family or friends (F/F) while participating in a self-care intervention for depressive symptoms; examine associations between patient-reported F/F support and use of self-care materials; and describe F/F perceptions of involvement in a subsample of F/F.

METHODS

One hundred eighty-nine of 223 (85%) patients aged 40+ with chronic physical conditions and co-morbid depressive symptoms participating in a randomized self-care intervention trial, completed structured telephone surveys at three months about the F/F support received. Ten F/F participated in post study qualitative interviews on the support provided.

RESULTS

30%, 44%, and 91% of patients reported overall F/F support with self-care, F/F involvement with the self-care intervention and emotional support, respectively. 61% felt positively and 10% felt negatively or conflicted with F/F support. F/F involvement in the self-care intervention was the only variable associated with patient use of self-care materials when examined alongside all F/F support variables (Proportional Odds Ratio = 1.21; 95% C.I. = 1.01, 1.45). F/F perceived less involvement in the self-care intervention than patients.

DISCUSSION

Patients engaged in a self-care intervention for depressive symptoms use more self-care materials when they perceive F/F involvement in the intervention. Patients and F/F may perceive involvement differently and benefit from discussions about potential F/F roles.

摘要

目的

描述患者在参与针对抑郁症状的自我护理干预期间报告从家人或朋友(F/F)处获得的支持;研究患者报告的F/F支持与自我护理材料使用之间的关联;并描述F/F对参与F/F子样本情况的看法。

方法

223名年龄在40岁及以上、患有慢性身体疾病且伴有抑郁症状的患者中,有189名(85%)参与了一项随机自我护理干预试验,在三个月时完成了关于所获得的F/F支持的结构化电话调查。10名F/F参与了关于所提供支持的研究后定性访谈。

结果

分别有30%、44%和91%的患者报告在自我护理方面得到了总体F/F支持、F/F参与自我护理干预以及情感支持。61%的患者对F/F支持感觉良好,10%的患者感觉消极或存在矛盾。在与所有F/F支持变量一起进行检查时,F/F参与自我护理干预是与患者使用自我护理材料相关的唯一变量(比例优势比 = 1.21;95%置信区间 = 1.01,1.45)。F/F认为自己在自我护理干预中的参与程度低于患者。

讨论

参与针对抑郁症状的自我护理干预的患者,当他们认为F/F参与了干预时,会更多地使用自我护理材料。患者和F/F对参与的认知可能不同,且可从关于F/F潜在角色的讨论中受益。

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