New York University Rory Meyers College of Nursing, USA.
Yale School of Nursing, West Haven, CT, USA.
J Fam Nurs. 2021 Feb;27(1):55-72. doi: 10.1177/1074840720977180. Epub 2020 Dec 17.
Family caregivers play an integral role in supporting patient self-management, yet how they perform this role is unclear. We conducted a qualitative metasynthesis of family caregivers' processes to support patient self-management of chronic, life-limiting illness and factors affecting their support. Methods included a systematic literature search, quality appraisal of articles, data abstraction, and data synthesis to produce novel themes. Thirty articles met inclusion criteria, representing 935 international family caregivers aged 18 to 89 years caring for patients with various health conditions. Three themes characterized family caregivers' processes to support patient self-management: "Focusing on the Patient's Illness Needs," "Activating Resources to Support Oneself as the Family Caregiver," and "Supporting a Patient Living with a Chronic, Life-Limiting Illness." Factors affecting family caregivers' support included Personal Characteristics, Health Status, Resources, Environmental Characteristics, and the Health Care System. The family caregiver role in supporting patient self-management is multidimensional, encompassing three processes of care and influenced by multiple factors.
家庭照顾者在支持患者自我管理方面发挥着重要作用，但他们如何履行这一角色尚不清楚。我们对家庭照顾者支持慢性、生命有限疾病患者自我管理的过程以及影响他们支持的因素进行了定性元分析。方法包括系统文献检索、文章质量评估、数据提取和数据综合，以产生新的主题。30 篇文章符合纳入标准，代表了 935 名年龄在 18 至 89 岁之间的国际家庭照顾者，他们照顾各种健康状况的患者。家庭照顾者支持患者自我管理的过程有三个主题：“关注患者的疾病需求”、“激活资源以支持自己作为家庭照顾者”和“支持患有慢性、生命有限疾病的患者”。影响家庭照顾者支持的因素包括个人特征、健康状况、资源、环境特征和医疗保健系统。家庭照顾者在支持患者自我管理方面的角色是多维度的，包括三个护理过程，并受到多种因素的影响。
