Kupeli Nuriye, Leavey Gerard, Harrington Jane, Lord Kathryn, King Michael, Nazareth Irwin, Moore Kirsten, Sampson Elizabeth L, Jones Louise
Division of Psychiatry, Marie Curie Palliative Care Research Department, University College London, London, UK.
Bamford Centre for Mental Health & Wellbeing, University of Ulster, Londonderry, UK.
Dementia (London). 2018 Feb;17(2):164-179. doi: 10.1177/1471301216636302. Epub 2016 Mar 1.
People with advanced dementia are frequently bed-bound, doubly incontinent and able to speak only a few words. Many reside in care homes and may often have complex needs requiring efficient and timely response by knowledgeable and compassionate staff. The aim of this study is to improve our understanding of health care professionals' attitudes and knowledge of the barriers to integrated care for people with advanced dementia. In-depth, interactive interviews conducted with 14 health care professionals including commissioners, care home managers, nurses and health care assistants in the UK. Barriers to care for people with advanced dementia are influenced by governmental and societal factors which contribute to challenging environments in care homes, poor morale amongst care staff and a fragmentation of health and social care at the end of life. Quality of care for people with dementia as they approach death may be improved by developing collaborative networks to foster improved relationships between health and social care services.
患有晚期痴呆症的人常常卧床不起,大小便失禁,只能说寥寥数语。许多人住在养老院,往往有复杂的需求,需要知识渊博且富有同情心的工作人员做出高效及时的回应。本研究的目的是增进我们对医疗保健专业人员对晚期痴呆症患者综合护理障碍的态度和知识的理解。对英国14名医疗保健专业人员进行了深入的互动访谈,这些人员包括专员、养老院经理、护士和医疗保健助理。晚期痴呆症患者的护理障碍受到政府和社会因素的影响,这些因素导致养老院环境具有挑战性、护理人员士气低落以及临终时健康和社会护理碎片化。通过建立协作网络以促进健康和社会护理服务之间的关系改善,可能会提高痴呆症患者临终时的护理质量。