Verhofstede Rebecca, Smets Tinne, Cohen Joachim, Costantini Massimo, Van Den Noortgate Nele, Deliens Luc
End-of-Life Care Research Group, Vrije Universiteit Brussel (VUB) & Ghent University, Brussels, Belgium.
Palliative Care Unit, IRCCS Arcispedale S. Maria Nuova, Reggio Emilia, Italy.
BMC Palliat Care. 2016 Mar 5;15:27. doi: 10.1186/s12904-016-0102-y.
To improve the quality of end-of-life care in geriatric hospital wards we developed the Care Programme for the Last Days of Life. It consists of 1) the Care Guide for the Last Days of Life, 2) supportive documentation and 3) an implementation guide. The aim of this study is (1) to determine the feasibility of implementing the Care Programme for the Last Days of Life in the acute geriatric hospital setting and (2) to explore the health care professionals' perceptions of the effects of the Care Programme on end-of-life care.
A phase 2 mixed methods study according with the MRC framework was performed in the acute geriatric ward of Ghent University Hospital between 1 April and 30 September 2013. During the implementation process a mixed methods approach was used including observation, interviews and the use of a quantitative process evaluation tool. This tool measured the success of implementation using several indicators, such as whether a steering group was formed, whether and how much of the health care staff was informed and trained and how many patients were cared for according to the Care Guide for the Last Days of Life.
The process evaluation tool showed that implementing the Care Programme for the Last Days of Life in the geriatric ward was successful and thus feasible; a steering group was formed consisting of two facilitators, health care staff of the geriatric ward were trained in using the Care Guide for the Last Days of Life which was subsequently introduced onto the ward and approximately 57% of all dying patients were cared for according to the Care Guide for the Last Days of Life. With regard to health care professionals' perceptions, nurses and physicians experienced the Care Guide for the Last Days of Life as improving the overall documentation of care, improving communication among health care staff and between health care staff and patient/family and improving the quality of end-of-life care. Barriers to implementing the Care Programme for the Last Days of Life successfully are, among others, difficulties with the content of the documents used within the Care Programme for the Last Days of Life and the low participation rate of physicians in the training sessions and audits.
Results of this mixed methods study suggest that implementing the Care Programme for the Last Days of Life is feasible and that it has favorable effects on end-of-life care as reported by health care professionals. Based on the identified barriers during the implementation process, we were able to make recommendations for future implementation and further refine the Care Programme for the Last Days of Life before implementing it in a phase 3 cluster randomized controlled trial for the evaluation of its effectiveness.
为提高老年医院病房临终关怀的质量,我们制定了“生命末期护理计划”。该计划包括:1)《生命末期护理指南》;2)支持性文件;3)一份实施指南。本研究的目的是:(1)确定在老年急症医院环境中实施“生命末期护理计划”的可行性;(2)探讨医护人员对该护理计划对临终关怀影响的看法。
2013年4月1日至9月30日期间,在根特大学医院的老年急症病房进行了一项符合医学研究委员会(MRC)框架的2期混合方法研究。在实施过程中,采用了混合方法,包括观察、访谈以及使用定量过程评估工具。该工具使用多个指标来衡量实施的成功程度,例如是否成立了指导小组、医护人员是否以及有多少人得到了通知和培训,以及有多少患者按照《生命末期护理指南》得到了护理。
过程评估工具显示,在老年病房实施“生命末期护理计划”是成功的,因此是可行的;成立了一个由两名协调员组成的指导小组,老年病房的医护人员接受了使用《生命末期护理指南》的培训,该指南随后被引入病房,所有临终患者中约有57%按照《生命末期护理指南》得到了护理。关于医护人员的看法,护士和医生认为《生命末期护理指南》改善了护理的整体记录,改善了医护人员之间以及医护人员与患者/家属之间的沟通,并提高了临终关怀的质量。成功实施“生命末期护理计划”的障碍包括,除其他外,“生命末期护理计划”中使用的文件内容存在困难,以及医生参加培训课程和审核的参与率较低。
这项混合方法研究的结果表明,实施“生命末期护理计划”是可行的,并且如医护人员所报告的,它对临终关怀有积极影响。基于在实施过程中发现的障碍,我们能够为未来的实施提出建议,并在第3阶段整群随机对照试验中对其有效性进行评估之前,进一步完善“生命末期护理计划”。