Meeussen Koen, Van den Block Lieve, Bossuyt Nathalie, Bilsen Johan, Echteld Michael, Van Casteren Viviane, Deliens Luc
End-of-Life Care Research Group, Vrije Universiteit Brussel, Laarbeeklaan 103, 1090 Brussels, Belgium.
Br J Gen Pract. 2009 Sep;59(566):665-70. doi: 10.3399/bjgp09X454124.
Being able to die in one's place of choice is an indicator of the quality of end-of-life care. GPs may play a key role in exploring and honouring patients' preferences for place of death.
To examine how often GPs are informed about patients' preferred place of death, by whom and for which patients, and to study the expressed preferred place of death and how often patients die at their preferred place.
One-year nationwide mortality retrospective study.
Sentinel Network of GPs in Belgium, 2006.
GPs' weekly registration of all deaths (patients aged =1 year).
A total of 798 non-sudden deaths were reported. GPs were informed of patients' preferred place of death in 46% of cases. GPs obtained this information directly from patients in 63%. GP awareness was positively associated with patients not being hospitalised in the last 3 months of life (odds ratio [OR] = 3.9; 95% confidence interval [CI] = 2.8 to 5.6), involvement of informal caregivers (OR = 3.3; 95% CI = 1.8 to 6.1), use of a multidisciplinary palliative care team (OR = 2.5; 95% CI = 1.8 to 3.5), and with presence of more than seven contacts between GP and patient or family in the last 3 months of life (OR = 3.0; 95% CI = 2.2 to 4.3). In instances where GPs were informed, more than half of patients (58%) preferred to die at home. Overall, 80% of patients died at their preferred place.
GPs are often unaware of their patients' preference for place of death. However, if GPs are informed, patients often die at their preferred location. Several healthcare characteristics might contribute to this and to a higher level of GP awareness.
能够在自己选择的地点离世是临终关怀质量的一项指标。全科医生在探究并尊重患者对死亡地点的偏好方面可能发挥关键作用。
调查全科医生多久会得知患者偏好的死亡地点、由谁告知以及针对哪些患者,研究患者表达的偏好死亡地点以及患者在其偏好地点离世的频率。
为期一年的全国性死亡率回顾性研究。
2006年比利时全科医生哨点网络。
全科医生每周对所有死亡病例(年龄≥1岁的患者)进行登记。
共报告了798例非猝死病例。在46%的病例中,全科医生得知了患者偏好的死亡地点。全科医生在63%的情况下直接从患者那里获得此信息。全科医生的知晓率与患者在生命的最后3个月未住院(优势比[OR]=3.9;95%置信区间[CI]=2.8至5.6)、有非正式护理人员参与(OR=3.3;95%CI=1.8至6.1)、使用多学科姑息治疗团队(OR=2.5;95%CI=1.8至3.5)以及在生命的最后3个月全科医生与患者或家属之间有超过7次接触(OR=3.0;95%CI=2.2至4.3)呈正相关。在全科医生得知的情况下,超过一半的患者(58%)更愿意在家中离世。总体而言,80%的患者在其偏好的地点离世。
全科医生常常不知道患者对死亡地点的偏好。然而,如果全科医生得知了,患者往往会在其偏好的地点离世。一些医疗保健特征可能促成了这一点以及更高水平的全科医生知晓率。