Machado Daisy Maria, Galano Eliana, de Menezes Succi Regina Célia, Vieira Carla Maria, Turato Egberto Ribeiro
Department of Pediatrics, Escola Paulista de Medicina, Universidade Federal de São Paulo (Unifesp), São Paulo, SP, Brazil.
Escola Paulista de Medicina, Universidade Federal de São Paulo (Unifesp), São Paulo, SP, Brazil.
Braz J Infect Dis. 2016 May-Jun;20(3):229-34. doi: 10.1016/j.bjid.2015.12.009. Epub 2016 Mar 2.
The main objective of this work is to describe the formation of the Transition Adolescent Clinic (TAC) and understand the process of transitioning adolescents with HIV/AIDS from pediatric to adult care, from the vantage point of individuals subjected to this process. A qualitative method and an intentional sample selected by criteria were adopted for this investigation, which was conducted in São Paulo, Brazil. An in-depth semi-structured interview was conducted with sixteen HIV-infected adolescents who had been part of a transitioning protocol. Adolescents expressed the need for more time to become adapted in the transition process. Having grown up under the care of a team of health care providers made many participants have reluctance toward transitioning. Concerns in moving away from their pediatricians and feelings of disruption, abandonment, or rejection were mentioned. Participants also expressed confidence in the pediatric team. At the same time they showed interest in the new team and expected to have close relationships with them. They also ask to have previous contacts with the adult health care team before the transition. Their talks suggest that they require slightly more time, not the time measured in days or months, but the time measured by constitutive experiences capable of building an expectation of future. This study examines the way in which the adolescents feel, and help to transform the health care transition model used at a public university. Listening to the adolescents' voices is crucial to a better understanding of their needs. They are those who can help the professionals reaching alternatives for a smooth and successful health care transition.
这项工作的主要目标是描述过渡青少年诊所（TAC）的形成，并从经历这一过程的个体的角度，了解感染艾滋病毒/艾滋病的青少年从儿科护理过渡到成人护理的过程。本研究采用定性方法和按标准选取的立意样本，在巴西圣保罗进行。对16名参与过渡方案的感染艾滋病毒的青少年进行了深入的半结构化访谈。青少年表示需要更多时间来适应过渡过程。在一组医疗保健提供者的照料下长大，使得许多参与者对过渡有所抵触。他们提到了离开儿科医生的担忧以及被打乱、被抛弃或被拒绝的感觉。参与者也表达了对儿科团队的信任。与此同时，他们对新团队表现出兴趣，并期望与他们建立密切关系。他们还要求在过渡之前与成人医疗保健团队有过接触。他们的谈话表明，他们需要的时间略多一些，不是以天数或月数来衡量的时间，而是以能够建立对未来期望的构成性经历来衡量的时间。这项研究考察了青少年的感受方式，并有助于改变一所公立大学所采用的医疗保健过渡模式。倾听青少年的声音对于更好地理解他们的需求至关重要。他们是那些能够帮助专业人员找到实现顺利且成功的医疗保健过渡的替代方案的人。
