Stewart Miriam, Evans Joshua, Letourneau Nicole, Masuda Jeffrey, Almond Amanda, Edey Jocelyn
Faculty of Nursing and School of Medicine, University of Alberta, Edmonton, AB, Canada.
Faculty of Humanities & Social Sciences, Athabasca University, Athabasca, AB, Canada.
J Pediatr Nurs. 2016 May-Jun;31(3):319-29. doi: 10.1016/j.pedn.2015.11.013. Epub 2016 Mar 8.
Burdens of poverty are often compounded by respiratory problems. This study aimed to identify the support needs and intervention preferences for low-income families facing this challenge.
Interviews were conducted in two Canadian provinces with low-income children/adolescents (n=32) diagnosed with respiratory health problems and their parents or family caregiver (n=37).
These vulnerable children and parents described non-supportive interactions with some health service providers and inadequate information. They reported isolation and support deficits, exacerbated by limited resources and health restrictions. Children/adolescents felt isolated and excluded and wanted to connect with peers. Group or dyadic level support, delivered by peers and health professionals, was desired. The importance of logistics to enhance accessibility and appeal of group or dyadic support interventions was clearly identified.
The findings of this study reveal that low-income children and their families encounter challenges to accessing support and to utilizing support resources.
Partnerships with low-income children/adolescents and family caregivers in provision of education and social support can combat isolation and ignorance. Reducing inequities for this high risk population could be achieved by providing support from experienced peers, in combination with health professional guidance, and knowledge about pulmonary health.
贫困负担常常因呼吸问题而加重。本研究旨在确定面临这一挑战的低收入家庭的支持需求和干预偏好。
在加拿大的两个省份，对32名被诊断患有呼吸健康问题的低收入儿童/青少年及其父母或家庭照顾者（37人）进行了访谈。
这些弱势儿童和父母描述了与一些医疗服务提供者之间缺乏支持的互动以及信息不足的情况。他们报告说，由于资源有限和健康限制，他们感到孤立无援，支持不足。儿童/青少年感到孤立和被排斥，希望与同龄人建立联系。他们希望获得由同龄人和健康专业人员提供的团体或二元支持。明确确定了后勤保障对于提高团体或二元支持干预措施的可及性和吸引力的重要性。
本研究结果表明，低收入儿童及其家庭在获得支持和利用支持资源方面面临挑战。
在提供教育和社会支持方面与低收入儿童/青少年及其家庭照顾者建立伙伴关系，可以消除孤立和无知。通过提供有经验的同龄人的支持，结合健康专业人员的指导以及肺部健康知识，可以减少这一高风险人群的不平等现象。
