Gräske Johannes, Meyer Saskia, Schmidt Annika, Schmidt Sylvia, Laporte Uribe Franziska, Thyrian Jochen René, Schäfer-Walkmann Susanne, Wolf-Ostermann Karin
1 Institut für Public Health und Pflegeforschung (IPP), Universität Bremen.
2 Kompetenzzentrum für Klinische Studien, Universität Bremen.
Pflege. 2016;29(2):93-101. doi: 10.1024/1012-5302/a000477.
Regional dementia care networks become more and more important in the care for community-dwelling persons with dementia (PwD). However, the quality of life of PwD, served by dementia care networks, has not been investigated yet. It also remains unclear if there are differences between urban and rural dementia care networks. This study therefore aims at investigating the quality of life of PwD using this care model, also regarding possible regional differences.
Within the DemNet-D-Study, PwD and their primary caregivers were interviewed using typical outcome parameters (quality of life: QoL-AD, depression: GDS, challenging behaviour: CMAI, capacities of daily living: IADL, caregiver burden: BIZA-D). In addition to these parameters, regional differences were analysed using multi-level-analysis.
In total, 560 PwD (79.7 years; 57.0 % female) and their caregivers participated in the study. Both self- and proxy-rated quality of life is on a moderate level. The analysis shows a sufficient explanation of the quality of life. (self: p<0.001, R2=0.493; proxy: p<0.001, R2=0.406). Higher quality of life was found for PwD living together with their care givers and for those PwD with higher capacities of daily living. Regional (urban vs. rural) differences could not be found.
The quality of life of community-dwelling PwD using regional dementia care networks is comparable to those in other studies of outpatient dementia care. Further investigation should be carried out regarding different types of dementia care networks.
区域痴呆症护理网络在照顾社区痴呆患者（PwD）方面变得越来越重要。然而，由痴呆症护理网络服务的PwD的生活质量尚未得到研究。城市和农村痴呆症护理网络之间是否存在差异也尚不清楚。因此，本研究旨在使用这种护理模式调查PwD的生活质量，并探讨可能存在的区域差异。
在DemNet-D研究中，使用典型的结果参数（生活质量：QoL-AD、抑郁：GDS、挑战行为：CMAI、日常生活能力：IADL、照顾者负担：BIZA-D）对PwD及其主要照顾者进行访谈。除了这些参数外，还使用多层次分析来分析区域差异。
共有560名PwD（79.7岁；57.0%为女性）及其照顾者参与了研究。自评和他人评定的生活质量均处于中等水平。分析表明生活质量得到了充分的解释。（自评：p<0.001，R2=0.493；他人评定：p<0.001，R2=0.406）。与照顾者同住的PwD以及日常生活能力较高的PwD的生活质量更高。未发现区域（城市与农村）差异。
使用区域痴呆症护理网络的社区PwD的生活质量与其他门诊痴呆症护理研究中的情况相当。应对不同类型的痴呆症护理网络进行进一步调查。
