晚期卵巢癌患者照料者的负担
Caregiver Burden in End-Stage Ovarian Cancer.
作者信息
Hartnett Joan, Thom Bridgette, Kline Nancy
机构信息
Memorial Sloan Kettering Cancer Center.
Heilbrunn Family Center for Research Nursing at Rockefeller University.
出版信息
Clin J Oncol Nurs. 2016 Apr;20(2):169-73. doi: 10.1188/16.CJON.169-173.
BACKGROUND
Caregiver burden associated with caring for women with ovarian cancer has received limited focus. However, these patients often have complex needs, requiring a high level of care at home and imposing substantial burdens on caregivers.
OBJECTIVES
This pilot study assessed the level of caregiver burden experienced by the primary caregivers of patients with end-stage ovarian cancer and identified variables associated with caregiver burden.
METHODS
Caregiver burden was assessed using the Caregiver Reaction Assessment. Fifty caregivers completed an anonymous and voluntary survey. Pearson correlations and independent samples t tests were used to analyze data.
FINDINGS
Most participants were Caucasian, married or living with a partner, and college graduates, with an annual household income of less than $90,000. Caregiver ages ranged from 29-81 years. Participants agreed most with the self-esteem scale, indicating they had pride in caring for their loved ones. Disrupted schedules and financial problems were the most burdensome factors in providing care. Because financial issues affected caregiver burden, nurses should facilitate interdisciplinary support. Future research is needed to determine the impact of nurse-led interventions to reduce caregiver burden.
背景
与照顾卵巢癌女性相关的照顾者负担受到的关注有限。然而，这些患者通常有复杂的需求，在家需要高水平的护理，这给照顾者带来了巨大负担。
目的
这项试点研究评估了晚期卵巢癌患者的主要照顾者所经历的照顾者负担水平，并确定了与照顾者负担相关的变量。
方法
使用照顾者反应评估量表来评估照顾者负担。50名照顾者完成了一项匿名自愿调查。采用Pearson相关性分析和独立样本t检验来分析数据。
结果
大多数参与者是白种人，已婚或与伴侣同住，是大学毕业生，家庭年收入低于9万美元。照顾者年龄在29岁至81岁之间。参与者对自尊量表的认同度最高，表明他们为照顾所爱的人感到自豪。日程安排被打乱和经济问题是提供护理时最繁重的因素。由于经济问题影响照顾者负担，护士应促进跨学科支持。未来需要进行研究以确定护士主导的干预措施对减轻照顾者负担的影响。
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