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一种用于测量智障儿童生活质量的新量表。

A new scale for the measurement of quality of life in children with intellectual disability.

作者信息

Gómez Laura E, Alcedo M Ángeles, Arias Benito, Fontanil Yolanda, Arias Víctor B, Monsalve Asunción, Verdugo Miguel Ángel

机构信息

Departamento de Psicología, Universidad de Oviedo, Spain.

Departamento de Psicología, Universidad de Oviedo, Spain.

出版信息

Res Dev Disabil. 2016 Jun-Jul;53-54:399-410. doi: 10.1016/j.ridd.2016.03.005. Epub 2016 Mar 21.

Abstract

BACKGROUND

Children and adolescents with intellectual disabilities make up a group which is in urgent need of an adequate operationalisation of the quality of life construct, not only to improve individual personal outcomes but also to develop and implement evidence based practices. For that reason, and with the aim of answering the growing demand for an adequate evaluation instrument for this group, the KidsLife scale was developed.

METHOD

This research provides evidence of the reliability and validity of the scale, which is composed of 96 items spread over eight subscales, and completed by a third-party respondent. The validation sample comprised 1060 people with intellectual disability, with ages ranging from 4 to 21 years old (M=13.51; SD=5.04).

RESULTS

The results suggest that the eight quality of life domains assessed on the scale are reliable (Cronbach's alpha ranging from 0.812 to 0.949). The evidence of the validity of the construct provided by Confirmatory Factor Analysis also demonstrated adequate indexes of fit for the eight-domain model.

DISCUSSION

Future lines of research which may use the KidsLife Scale are suggested and discussed.

摘要

背景

智障儿童和青少年是一个迫切需要对生活质量概念进行充分操作化的群体,这不仅是为了改善个人的生活成果,也是为了开发和实施基于证据的实践方法。出于这个原因,为了满足对该群体适用的评估工具日益增长的需求,开发了儿童生活量表(KidsLife scale)。

方法

本研究提供了该量表信效度的证据,该量表由分布在八个子量表中的96个项目组成,由第三方受访者完成。验证样本包括1060名智障人士,年龄从4岁到21岁不等(M = 13.51;SD = 5.04)。

结果

结果表明,该量表评估的八个生活质量领域是可靠的(克朗巴哈系数在0.812至0.949之间)。验证性因素分析提供的结构效度证据也表明八领域模型具有足够的拟合指数。

讨论

提出并讨论了未来可能使用儿童生活量表的研究方向。

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