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新冠疫情期间发育障碍儿童及青少年家庭的家庭管理方式:一项横断面研究

Family management styles of families of children and adolescents with developmental disabilities during the COVID-19 pandemic: a cross-sectional study.

作者信息

Lee Anna, Park Eun Ju, Kim Yeeun

机构信息

College of Nursing, Yonsei University, 50-1 Yonsei-ro, Seodaemun-gu, Seoul, 03720, South Korea.

Mo-Im Kim Nursing Research Institute, Yonsei University, 50-1, Yonsei-ro, Seodaemun-gu, Seoul, 03722, South Korea.

出版信息

Sci Rep. 2025 Apr 30;15(1):15260. doi: 10.1038/s41598-025-99255-7.

Abstract

Raising a child with developmental disabilities (DDs) involves both rewards and challenges, with family management styles influencing the quality of life (QoL) of both children and families, particularly during crises. This study identified family management styles and their relationships with the QoL of children and adolescents and family functioning during the COVID-19 pandemic. Conducted between September 2020 and October 2021, the study included 200 Korean parents of individuals with DDs under the age of 21. Online data collection assessed family management styles, family functioning, and children's QoL. Cluster analysis and analysis of variance were used to identify family management styles and to compare demographics, family functioning, and QoL across groups, respectively. Three clusters were identified: "Thriving" (n = 20), "Somewhat Resilient" (n = 118), and "Struggling" (n = 62). The Thriving cluster demonstrated effective condition management, a positive outlook, and high parental cooperation. The Somewhat Resilient cluster displayed moderate functioning. The Struggling cluster demonstrated the greatest challenges and the lowest capacity for managing the condition. Significant differences in children's QoL, family functioning, and demographic variables were observed across clusters. These findings highlight how families manage DDs during the pandemic and the need for tailored interventions based on family management styles.

摘要

抚养一个患有发育障碍(DDs)的孩子既有回报也有挑战,家庭管理方式会影响孩子和家庭的生活质量(QoL),尤其是在危机期间。本研究确定了家庭管理方式及其与儿童和青少年生活质量以及新冠疫情期间家庭功能的关系。该研究于2020年9月至2021年10月进行,纳入了200名韩国21岁以下患有发育障碍个体的父母。通过在线数据收集评估家庭管理方式、家庭功能和儿童的生活质量。聚类分析和方差分析分别用于确定家庭管理方式,并比较不同组之间的人口统计学特征、家庭功能和生活质量。确定了三个类别:“茁壮成长型”(n = 20)、“略有韧性型”(n = 118)和“艰难应对型”(n = 62)。“茁壮成长型”类别表现出有效的病情管理、积极的态度和高度的父母合作。“略有韧性型”类别表现出中等功能。“艰难应对型”类别表现出最大的挑战和最低的病情管理能力。不同类别在儿童生活质量、家庭功能和人口统计学变量方面存在显著差异。这些发现凸显了疫情期间家庭如何管理发育障碍,以及基于家庭管理方式进行针对性干预的必要性。

https://cdn.ncbi.nlm.nih.gov/pmc/blobs/a143/12043839/36b732958803/41598_2025_99255_Fig1_HTML.jpg

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