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皮肤癌门诊患者的心理社会负担及支持需求

Psychosocial burden and desire for support in outpatients with skin cancer.

作者信息

Buchhold Britta, Wiesmann Ulrich, Bahlmann Johannes, Lutze Stine, Eggert Claudia, Arnold Andreas, Daeschlein Georg, Jünger Michael, Hannich Hans-Joachim

机构信息

Institute for Medical Psychology, Greifswald University Hospital, Greifswald, Germany.

Department of Psychiatry and Psychotherapy, Greifswald University Hospital, Greifswald, Germany.

出版信息

J Dtsch Dermatol Ges. 2016 Apr;14(4):405-15. doi: 10.1111/ddg.12767.

Abstract

BACKGROUND

An important basis for adequate psycho-oncological and psychosocial care of cancer patients is the regular assessment of their psychosocial distress and thus their need for care. For this purpose, there are numerous questionnaires available. The objective of the present study was to assess whether distressed patients require professional support and which screening instrument outpatients with skin cancer prefer.

PATIENTS AND METHODS

In a cross-sectional survey, we asked outpatients with skin cancer to fill out three questionnaires assessing psychosocial stress, and to indicate which one they considered most adequate. Patients were offered the following three instruments: Hornheide Questionnaire (27 items), Hornheide Screening Instrument (7 items), and the Distress Thermometer. In addition, we inquired about the patients' desire for support.

RESULTS

(1) Comparing subjective distress and patients' declared desire for support revealed a marked divergence. While one-third of the 137 patients were identified as being in need of care, only 11.5% of the sample requested such support. (2) 63.7% of patients chose the long version of the Hornheide Questionnaire.

CONCLUSIONS

In addition to their psychosocial burden, patients' desire for support should be assessed. Moreover, apart from screening tools, other ways to provide access to psychosocial care should be considered.

摘要

背景

对癌症患者进行充分的心理肿瘤学和心理社会护理的一个重要依据是定期评估他们的心理社会困扰,从而评估他们的护理需求。为此,有许多可用的问卷。本研究的目的是评估困扰患者是否需要专业支持,以及皮肤癌门诊患者更喜欢哪种筛查工具。

患者与方法

在一项横断面调查中,我们让皮肤癌门诊患者填写三份评估心理社会压力的问卷,并指出他们认为哪一份最恰当。向患者提供了以下三种工具:霍恩海德问卷(27项)、霍恩海德筛查工具(7项)和苦恼温度计。此外,我们还询问了患者对支持的需求。

结果

(1)比较主观困扰和患者宣称的对支持的需求,发现存在明显差异。在137名患者中,三分之一被确定需要护理,但只有11.5%的样本请求这种支持。(2)63.7%的患者选择了霍恩海德问卷的长版本。

结论

除了评估患者的心理社会负担外,还应评估他们对支持的需求。此外,除了筛查工具外,还应考虑提供心理社会护理的其他途径。

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