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[霍恩海德问卷用于皮肤肿瘤患者心理社会支持的有效性:对奥地利和德国黑色素瘤门诊患者的一项调查]

[The validity of the Hornheide questionnaire for psychosocial support in skin tumor patients: a survey in an Austrian and German outpatient population with melanoma].

作者信息

Rumpold G, Augustin M, Zschocke I, Strittmatter G, Söllner W

机构信息

Univ.-Klinik für Medizinische Psychologie und Psychotherapie Innsbruck.

出版信息

Psychother Psychosom Med Psychol. 2001 Jan;51(1):25-33. doi: 10.1055/s-2001-10028.

Abstract

Tumour patients are subject to different degrees of psychosocial distress depending on the course of disease, personality variables and amount of social support available. Often patients do not spontaneously talk about their distress and attending physicians fail to detect it. Therefore, it is important that the presence of distress is ascertained by specific screening instruments so that appropriate supportive measures can be instituted. The Hornheide Questionnaire (HQ) employed for investigating the need for psychosocial support in the case of patients with skin tumours and with tumours in the head and neck region represents such a specific screening instrument. The present study investigates the validity of the HQ on the basis of two representative samples from two different University Clinics for treatment and follow-ups of melanoma patients. With the help of the HQ, 215 patients at the Dermatology Out-patient Unit of the University of Innsbruck and 223 patients at the University of Freiburg were investigated with regard to their subjective experience of distress. The external constructive validity criteria were established on the basis of the Freiburg Questionnaire of Disease-Coping, the questionnaire of social support and Beck's Depression Inventory. There were significant differences between individuals in the severity of distress in different age groups and in patients in different tumour stages. The internal consistency of the HQ and its subscales proved to be satisfactory demarcation from other psychosocial dimensions and an adequate correlation with similar dimensions (depression, depressive illness coping, social support, compliance). The HQ appears to be an economical and valid screening instrument for detecting the need for psychosocial support in melanoma patients in the out-patient follow-up stage.

摘要

肿瘤患者会因疾病进程、个性变量和可获得的社会支持程度而遭受不同程度的心理社会困扰。患者往往不会主动谈及自己的困扰,主治医生也未能察觉。因此,通过特定的筛查工具确定是否存在困扰很重要,以便能够采取适当的支持措施。用于调查皮肤肿瘤患者以及头颈部肿瘤患者心理社会支持需求的霍恩海德问卷(HQ)就是这样一种特定的筛查工具。本研究基于来自两个不同大学诊所的两个代表性样本,对黑色素瘤患者进行治疗和随访,以此调查HQ的有效性。借助HQ,因斯布鲁克大学皮肤科门诊的215名患者以及弗莱堡大学的223名患者接受了关于其困扰主观体验的调查。外部建构效度标准是基于弗莱堡疾病应对问卷、社会支持问卷和贝克抑郁量表建立的。不同年龄组个体以及处于不同肿瘤阶段的患者在困扰严重程度方面存在显著差异。HQ及其子量表的内部一致性被证明从其他心理社会维度进行划分是令人满意的,并且与类似维度(抑郁、抑郁疾病应对、社会支持、依从性)有充分的相关性。HQ似乎是一种经济有效的筛查工具,可用于在门诊随访阶段检测黑色素瘤患者对心理社会支持的需求。

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