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通过在线话语生成社会运动在线社区:肌痛性脑脊髓炎的案例

Generating a Social Movement Online Community through an Online Discourse: The Case of Myalgic Encephalomyelitis.

作者信息

Lian Olaug S, Grue Jan

机构信息

Department of Community Medicine, Faculty of Health Sciences, University of Tromsø - The Arctic University of Norway, 9037, Tromsø, Norway.

Department of Special Needs Education, University of Oslo, 0318, Oslo, Norway.

出版信息

J Med Humanit. 2017 Jun;38(2):173-189. doi: 10.1007/s10912-016-9390-8.

Abstract

Online communities, created and sustained by people sharing and discussing texts on the internet, play an increasingly important role in social health movements. In this essay, we explore a collective mobilization in miniature through an in-depth analysis of two satiric texts from an online community for people with myalgic encephalomyelitis (ME). By blending a sociological analysis with a rhetorical exploration of these texts, our aim is to grasp the discursive generation of a social movement online community set up by sufferers themselves to negotiate and contest the dominating biomedical perception of their condition.

摘要

由人们在互联网上分享和讨论文本所创建并维持的在线社区,在社会健康运动中发挥着越来越重要的作用。在本文中,我们通过对一个针对肌痛性脑脊髓炎(ME)患者的在线社区中的两篇讽刺文本进行深入分析,来探究一场小规模的集体动员。通过将社会学分析与对这些文本的修辞学探究相结合,我们的目的是理解一个由患者自己建立的在线社区所产生的话语,该社区旨在协商并质疑对其病情的主导性生物医学认知。

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