Parry Ruth, Pino Marco, Faull Christina, Feathers Luke
Health Sciences, University of Nottingham, Nottingham, UK.
LOROS Hospice Care for Leicestershire and Rutland, and Medicine University Hospitals Leicester, UK.
Patient Educ Couns. 2016 Aug;99(8):1271-84. doi: 10.1016/j.pec.2016.03.013. Epub 2016 Mar 17.
To contribute to understandings about acceptability and risks entailed in video-based research on healthcare communication. To generate recommendations for non-covert video-based research on healthcare communication - with a focus on maximising its acceptability to participants, and managing and reducing its risks.
A literature review and synthesis of (a) empirical research on participant acceptability and risks of video recording; (b) regulations of professional and governmental bodies; (c) reviews and commentaries; (d) guidance and recommendations. These were gathered across several academic and professional fields (including medical, educational, and social scientific).
36 publications were included in the review and synthesis (7 regulatory documents, 7 empirical, 4 reviews/commentaries, 18 guidance/recommendations). In the context of research aiming in some way to improve healthcare communication:
The recommendations are designed to support deliberations and decisions about individual studies and to support ethical scrutiny of proposed research studies. Whilst preliminary, it is nevertheless the most comprehensive and detailed currently available.
促进对医疗保健沟通领域基于视频的研究的可接受性及所涉及风险的理解。为医疗保健沟通领域的非隐蔽式基于视频的研究提出建议——重点在于最大限度提高参与者对其的可接受性,并管理和降低其风险。
对以下内容进行文献综述与综合分析:(a)关于参与者对视频录制的可接受性及风险的实证研究;(b)专业及政府机构的规定;(c)综述与评论;(d)指南与建议。这些资料来自多个学术和专业领域(包括医学、教育和社会科学领域)。
综述与综合分析纳入了36篇出版物(7份监管文件、7份实证研究、4篇综述/评论、18份指南/建议)。在旨在以某种方式改善医疗保健沟通的研究背景下:
这些建议旨在支持针对个别研究的审议和决策,并支持对拟议研究进行伦理审查。虽然是初步的,但却是目前最全面、最详细的。