Dev World Bioeth. 2020 Mar;20(1):16-26. doi: 10.1111/dewb.12226. Epub 2019 Mar 19.
Video-recording healthcare interactions provides important opportunities for research and service improvement. However, this method brings about tensions, especially when recording sensitive topics. Subsequent reflection may compel the researcher to engage in ethical and moral deliberations. This paper presents experiences from a South African genetic counselling study which made use of video-recordings to understand communicative processes in routine practice. Video-recording as a research method, as well as contextual and process considerations are discussed, such as researching one's own field, issues of trust and anonymity, the challenge of providing true informed consent and capturing details which may cause psychological harm. Several recommendations for research practice in diverse healthcare settings are made. This includes the value of reflective pieces, the importance of retrospective consent, disclosure of the limitations to anonymity, as well as the collective responsibility of those involved to produce ethical research. These recommendations have value for genetic counselling and other healthcare fields.
视频记录医疗保健互动为研究和服务改进提供了重要机会。然而，这种方法带来了紧张局势，尤其是在记录敏感话题时。随后的反思可能迫使研究人员进行伦理和道德思考。本文介绍了南非遗传咨询研究的经验，该研究利用视频记录来了解常规实践中的沟通过程。讨论了视频记录作为一种研究方法以及背景和过程方面的考虑因素，例如研究自己的领域、信任和匿名问题、提供真正知情同意的挑战以及记录可能造成心理伤害的细节。为在不同的医疗保健环境中进行研究提出了一些建议。这包括反思性文章的价值、回顾性同意的重要性、披露匿名限制以及参与人员在产生伦理研究方面的集体责任。这些建议对遗传咨询和其他医疗保健领域具有价值。
