Leow Mabel Q H, Chan Sally W C
Biomechanics Laboratory,Singapore General Hospital,Singapore.
School of Nursing and Midwifery,Faculty of Health and Medicine,University of Newcastle,New South Wales,Australia.
Palliat Support Care. 2016 Oct;14(5):474-8. doi: 10.1017/S1478951516000225. Epub 2016 Apr 13.
Our aim was to evaluate caregivers' perceptions of a video, telephone follow-up, and online forum as components of a psychoeducational intervention.
Qualitative semistructured face-to-face interviews were conducted with 12 participants two weeks post-intervention. The study was conducted from September of 2012 to May of 2015. Family caregivers were recruited from four home hospice organizations (HCA Hospice Care, Metta Hospice, Singapore Cancer Centre, and Agape Methodist Hospice) and the National Cancer Centre outpatient clinic in Singapore. A purposive sample was employed, and participants were recruited until data saturation. Qualitative interviews were transcribed verbatim. Transcripts were coded and analyzed using content analysis. Two of the research team members were involved in the data analysis.
Two-thirds of participants were females (n = 8). Their ages ranged from 22 to 67 (mean = 50.50, SD = 11.53). About two-thirds were married (n = 7). Most participants were caring for a parent (n = 10), one for a spouse, and one for her mother-in-law. Caregivers favored the use of video for delivery of educational information. They liked the visual and audio aspects of the video. The ability to identify with the caregiver and scenarios in the video helped in the learning process. They appreciated telephone follow-ups from healthcare professionals for informational and emotional support. The online forum as a platform for sharing of information and provision of support was not received well by the caregivers in this study. The reasons for this included their being busy, not being computer savvy, rarely surfing the internet, and not feeling comfortable sharing with strangers on an online platform.
This study provided insight into caregivers' perceptions of various components of a psychoeducational intervention. It also gave us a better understanding of how future psychoeducational interventions and support for caregivers of persons with advanced cancer could be provided.
我们的目的是评估护理人员对作为心理教育干预组成部分的视频、电话随访和在线论坛的看法。
在干预两周后，对12名参与者进行了定性半结构化面对面访谈。该研究于2012年9月至2015年5月进行。家庭护理人员从新加坡的四个家庭临终关怀组织（HCA临终关怀护理、慈爱临终关怀、新加坡癌症中心和爱加倍卫理公会临终关怀）以及国家癌症中心门诊招募。采用目的抽样法，持续招募参与者直至数据饱和。定性访谈逐字记录。使用内容分析法对转录本进行编码和分析。两名研究团队成员参与了数据分析。
三分之二的参与者为女性（n = 8）。她们的年龄在22岁至67岁之间（平均 = 50.50，标准差 = 11.53）。约三分之二已婚（n = 7）。大多数参与者照顾的是父母（n = 10），一人照顾配偶，一人照顾婆婆。护理人员倾向于使用视频来传递教育信息。他们喜欢视频中的视觉和音频元素。能够认同视频中的护理人员和场景有助于学习过程。他们感谢医疗保健专业人员的电话随访提供信息和情感支持。在本研究中，护理人员对作为信息共享和支持平台的在线论坛接受度不高。原因包括他们很忙、不精通电脑、很少上网以及在在线平台上与陌生人分享感到不自在。
本研究深入了解了护理人员对心理教育干预各个组成部分的看法。它还使我们更好地理解了如何为晚期癌症患者的护理人员提供未来的心理教育干预和支持。
