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希望至死犹存……一项关于姑息治疗阶段癌症患者希望内涵的定性研究。

Hope dies last … A qualitative study into the meaning of hope for people with cancer in the palliative phase.

作者信息

Nierop-van Baalen C, Grypdonck M, van Hecke A, Verhaeghe S

机构信息

Alrijne Ziekenhuis, Leiden, The Netherlands.

Department of Public Health, University Hospital, Ghent University, Ghent, Belgium.

出版信息

Eur J Cancer Care (Engl). 2016 Jul;25(4):570-9. doi: 10.1111/ecc.12500. Epub 2016 Apr 21.

Abstract

Palliative patients may have strong hope, even hope for a cure, despite knowing their prognosis. Health professionals do not always understand patients who have this kind of hope. The aim of this article was to explore the meaning of hope among patients with cancer in the palliative phase. A secondary analysis was conducted including a constant comparative analysis to uncover the processes underlying the maintenance of hope, of previously collected interview data (n = 76). The meaning of hope is related to the importance of the object it is attached to, rather than to a real chance of achieving this object. Hope has a dual function: patients hope because they cannot forsake it and because they benefit so much from it. Hope can spring from many sources and is influenced by various factors. If there are fewer potent sources to tap into, people create hope themselves and this type of self-created hope takes more effort to maintain. Patients use different strategies to increase their hope, described as the 'the work of hope'. A better understanding of the work of hope can lead to better psychosocial support by health professionals. Health professionals convey many messages that affect the work of hope.

摘要

姑息治疗患者可能抱有强烈的希望,即便知晓预后情况,甚至还会怀有治愈的希望。医疗专业人员并不总是理解抱有此类希望的患者。本文旨在探究处于姑息治疗阶段的癌症患者心中希望的意义。我们进行了二次分析,包括对先前收集的访谈数据(n = 76)进行持续比较分析,以揭示维持希望背后的过程。希望的意义与它所依附对象的重要性相关,而非与实现该对象的实际可能性相关。希望具有双重功能:患者怀有希望是因为他们无法舍弃它,也因为他们从中获益良多。希望可以源于多种来源,并受到各种因素的影响。如果可供挖掘的有力来源较少,人们就会自己创造希望,而这种自我创造的希望需要付出更多努力去维持。患者会采用不同策略来增强希望,这被称为“希望的工作”。更好地理解希望的工作能够使医疗专业人员提供更好的心理社会支持。医疗专业人员传递着许多影响希望工作的信息。

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