Israelsson-Skogsberg Åsa, Lindahl Berit
Borås University College, Faculty of Caring Sciences, Work Life & Social Welfare, Borås, Sweden.
Scand J Caring Sci. 2017 Mar;31(1):27-36. doi: 10.1111/scs.12326. Epub 2016 Apr 29.
The aim of this study was to describe personal care assistants' (PCA) experiences of working with a ventilator-assisted person at home.
Data were collected from fifteen audiotaped semistructured interviews with PCAs supporting a child or adult using home mechanical ventilation (HMV). Thirteen women and two men participated; their working experience with HMV users ranged from one to 17 years (median 6 years). Data were subjected to qualitative content analysis in an inductive and interpretive manner.
Five categories emerged from the data: Being part of a complex work situation; Taking on a multidimensional responsibility; Caring carried out in someone's home; Creating boundaries in an environment with indistinct limits; and Being close to another's body and soul.
The participants felt very close to the person they worked with, both physically and emotionally. They had a great responsibility and therefore a commensurate need for support, guidance and a well-functioning organisation around the HMV user. There is international consensus that advanced home care will continue to expand and personal care assistance is key in this development. We suggest that one way to move forward for PCAs working with HMV users is to create multiprofessional teams led by a key-person who coordinates the individual needs. More research is needed within this area from a broad perspective including the HMV-assisted persons, relatives, personal care assistants and management organisations.
本研究旨在描述家庭护理助理（PCA）在家中照顾使用呼吸机辅助的患者的经历。
通过对15名支持使用家庭机械通气（HMV）的儿童或成人的PCA进行半结构化访谈并录音来收集数据。13名女性和2名男性参与了访谈；他们与HMV使用者的工作经验从1年到17年不等（中位数为6年）。对数据进行归纳和解释性的定性内容分析。
数据归纳出五个类别：身处复杂的工作环境；承担多方面的责任；在他人家中提供护理；在界限模糊的环境中设定界限；贴近他人的身心。
参与者在身体和情感上都感觉与他们护理的对象非常亲近。他们肩负重大责任，因此相应地需要围绕HMV使用者提供支持、指导和运作良好的组织。国际上一致认为，高级家庭护理将持续扩展，而个人护理协助是这一发展的关键。我们建议，对于照顾HMV使用者的PCA来说，前进的一种方式是创建由关键人物领导的多专业团队，该关键人物负责协调个人需求。需要从包括HMV辅助患者、亲属、个人护理助理和管理组织在内的广泛视角对该领域进行更多研究。
