Laakso Katja, Markström Agneta, Havstam Christina, Idvall Markus, Hartelius Lena
Institute of Neuroscience and Physiology, Division of Speech and Language Pathology, University of Gothenburg , Gothenburg , Sweden .
Disabil Rehabil. 2014;36(11):875-83. doi: 10.3109/09638288.2013.822572. Epub 2013 Aug 9.
The aim of the study was to explore the communication experiences of key communications partners (CPs) of individuals receiving home mechanical ventilation (HMV), with particular emphasis on the possibilities, difficulties and limitations CPs experienced in communication, possible support given to facilitate communication and exploring what made a skilled communicator.
A qualitative research design using interviews was used. The participants included 19 key CPs of individuals receiving HMV.
The analysis resulted in five themes: Encountering communication limitations, Functional communication strategies, Being a communication facilitator, Role insecurity and Emotional reactions and coping. The findings revealed that CPs needed to develop partly new reference frames for communication. In particular, participants emphasised the need to understand and interpret subtle details in the communicative interaction.
The findings are discussed in the light of previous research, in particular an earlier study exploring another perspective; the ventilator-supported individuals' experiences of communication. Issues relating to the educational needs of CPs of individuals receiving HMV are discussed. The results are intended to enhance understanding of the challenges that individuals receiving HMV and their CPs face with communication, which should be of relevance not only to speech therapists, but for all healthcare practitioners in the field of HMV.
本研究旨在探讨接受家庭机械通气（HMV）患者的关键沟通伙伴（CPs）的沟通经历，特别关注CPs在沟通中所经历的可能性、困难和限制，为促进沟通可能提供的支持，以及探究成为一名熟练沟通者的因素。
采用访谈的定性研究设计。参与者包括19名接受HMV患者的关键CPs。
分析得出五个主题：遭遇沟通限制、功能性沟通策略、成为沟通促进者、角色不安全感以及情绪反应与应对。研究结果表明，CPs需要为沟通建立部分全新的参考框架。尤其是，参与者强调需要理解和解读沟通互动中的细微细节。
根据先前的研究，特别是一项探索另一个视角——接受通气支持患者的沟通经历的早期研究，对研究结果进行了讨论。讨论了与接受HMV患者的CPs教育需求相关的问题。研究结果旨在增进对接受HMV患者及其CPs在沟通方面所面临挑战的理解，这不仅对言语治疗师，而且对HMV领域的所有医疗从业者都具有重要意义。
