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研究一种用于自闭症谱系障碍的新型远程医疗诊断方法的准确性。

Investigating the accuracy of a novel telehealth diagnostic approach for autism spectrum disorder.

作者信息

Smith Christopher J, Rozga Agata, Matthews Nicole, Oberleitner Ron, Nazneen Nazneen, Abowd Gregory

机构信息

Southwest Autism Research and Resource Center.

School of Interactive Computing, Georgia Institute of Technology.

出版信息

Psychol Assess. 2017 Mar;29(3):245-252. doi: 10.1037/pas0000317. Epub 2016 May 19.

DOI:10.1037/pas0000317
PMID:27196689
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC5116282/
Abstract

Research indicates that a substantial amount of time elapses between parents' first concerns about their child's development and a formal diagnosis of autism spectrum disorder (ASD). Telehealth presents an opportunity to expedite the diagnostic process. This project compared a novel telehealth diagnostic approach that utilizes clinically guided in-home video recordings to the gold standard in-person diagnostic assessment. Participants included 40 families seeking an ASD evaluation for their child and 11 families of typically developing children. Children were between the ages of 18 months and 6 years 11 months; mean adaptive behavior composite = 75.47 (SD = 15.94). All parent participants spoke English fluently. Families completed the Naturalistic Observation Diagnostic Assessment (NODA) for ASD, which was compared to an in-person assessment (IPA). Agreement between the 2 methods, as well as sensitivity, specificity, and interrater reliability, were calculated for the full sample and the subsample of families seeking an ASD evaluation. Diagnostic agreement between NODA and the IPA was 88.2% (κ = 0.75) in the full sample and 85% (κ = 0.58) in the subsample. Sensitivity was 84.9% in both, whereas specificity was 94.4% in the full sample and 85.7% in the subsample. Kappa coefficients for interrater reliability indicated 85% to 90% accuracy between raters. NODA utilizes telehealth technology for families to share information with professionals and provides a method to inform clinical judgment for a diagnosis of ASD. Due to the high level of agreement with the IPA in this sample, NODA has potential to improve the efficiency of the diagnostic process for ASD. (PsycINFO Database Record

摘要

研究表明,从父母首次对孩子的发育感到担忧到正式诊断出自闭症谱系障碍(ASD)之间会经过相当长的时间。远程医疗为加快诊断过程提供了一个机会。本项目将一种利用临床指导下的家庭视频记录的新型远程医疗诊断方法与金标准的面对面诊断评估进行了比较。参与者包括40个为孩子寻求ASD评估的家庭以及11个发育正常儿童的家庭。孩子们的年龄在18个月至6岁11个月之间;平均适应性行为综合得分 = 75.47(标准差 = 15.94)。所有参与的家长都能流利地说英语。家庭完成了针对ASD的自然观察诊断评估(NODA),并将其与面对面评估(IPA)进行比较。计算了这两种方法之间的一致性以及敏感性、特异性和评分者间信度,针对整个样本以及寻求ASD评估的家庭子样本进行了计算。在整个样本中,NODA与IPA之间的诊断一致性为88.2%(κ = 0.75),在子样本中为85%(κ = 0.58)。两者的敏感性均为84.9%,而在整个样本中特异性为94.4%,在子样本中为85.7%。评分者间信度的Kappa系数表明评分者之间的准确率在85%至90%之间。NODA利用远程医疗技术让家庭与专业人员共享信息,并提供了一种为ASD诊断提供临床判断依据的方法。由于在这个样本中与IPA的一致性水平较高,NODA有潜力提高ASD诊断过程的效率。(PsycINFO数据库记录

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本文引用的文献

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A Novel System for Supporting Autism Diagnosis Using Home Videos: Iterative Development and Evaluation of System Design.利用家庭录像支持自闭症诊断的新系统:系统设计的迭代开发和评估。
JMIR Mhealth Uhealth. 2015 Jun 17;3(2):e68. doi: 10.2196/mhealth.4393.
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Identifying autism in a brief observation.在简短观察中识别自闭症。
Pediatrics. 2015 Feb;135(2):e330-8. doi: 10.1542/peds.2014-1428. Epub 2015 Jan 12.
3
Increasing Access to an ASD Imitation Intervention Via a Telehealth Parent Training Program.通过远程医疗家长培训项目增加获得自闭症模仿干预的机会。
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Prevalence of autism spectrum disorder among children aged 8 years - autism and developmental disabilities monitoring network, 11 sites, United States, 2010.8 岁儿童自闭症谱系障碍患病率 - 自闭症和发育障碍监测网络,11 个地点,美国,2010 年。
MMWR Surveill Summ. 2014 Mar 28;63(2):1-21.
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Practice parameter for the assessment and treatment of children and adolescents with autism spectrum disorder.自闭症谱系障碍儿童和青少年评估与治疗的实践参数。
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Child Adolesc Ment Health. 2013 Feb;18(1):52-63. doi: 10.1111/j.1475-3588.2012.00664.x. Epub 2012 Apr 4.
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Telehealth for expanding the reach of early autism training to parents.远程医疗助力将早期自闭症培训推广至家长群体。
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Using telepractice in parent training in early autism.在早期自闭症的家长培训中使用远程实践。
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