Dai Yael G, Tagavi Daina M, Stone Wendy L, Carter Alice S
Department of Psychology, Florida International University, Miami, FL, USA.
Department of Psychiatry and Behavioral Sciences, University of Washington, Seattle, WA, USA.
J Autism Dev Disord. 2025 Jan 23. doi: 10.1007/s10803-025-06719-w.
There are few validated remote tools that can be used to assess for autism and to capture subtle changes in children's social communication over time. Recently, user-centered design principles were applied to develop a parent-mediated remote assessment, the Reciprocal Imitation and Social Engagement Child Play Protocol (RISE CPP) to enable researchers to capture micro-level behaviors in children, while promoting useability for researchers and families, reducing caregiver burden, and maintaining reliability. This paper describes a pilot study to validate the RISE CPP as a tool to support clinician diagnosis of autism. Thirty-eight caregiver-child dyads (24-41 months, M = 34, SD = 4; 86% male) completed a remote parent-mediated assessment at home (RISE CPP) and an in-lab clinician-led assessment (Autism Diagnostic Observation Schedule; ADOS-2). Independent clinician diagnosis based on observations across the remote and in-lab assessments showed agreement for all but one child (K = .89). Clinicians completing in-person and remote assessments reported similar levels of confidence in their diagnoses, t(37) = 0.93, p = .36, d = .15. Mixed-methods analysis revealed unique benefits and challenges to the remote and in-person assessments and suggested that both assessments were acceptable to caregivers. Results provide preliminary support for the RISE CPP as a diagnostic tool. The remote administration may increase equity for clinical and research diagnostic assessments among families who are traditionally underserved and underrepresented in research.
很少有经过验证的远程工具可用于评估自闭症,并捕捉儿童社交沟通随时间的细微变化。最近,以用户为中心的设计原则被应用于开发一种由家长介导的远程评估方法,即互惠模仿与社会参与儿童游戏协议(RISE CPP),以使研究人员能够捕捉儿童的微观行为,同时提高对研究人员和家庭的可用性,减轻照顾者负担,并保持可靠性。本文描述了一项试点研究,以验证RISE CPP作为支持临床医生诊断自闭症的工具。38对照顾者-儿童二元组(24 - 41个月,M = 34,SD = 4;86%为男性)在家中完成了一次由家长介导的远程评估(RISE CPP)和一次在实验室由临床医生主导的评估(自闭症诊断观察量表;ADOS - 2)。基于远程和实验室评估的观察结果进行的独立临床医生诊断显示,除了一个孩子外,其他所有孩子的诊断结果都一致(K = 0.89)。完成面对面评估和远程评估的临床医生报告说,他们对自己诊断的信心水平相似,t(37) = 0.93,p = 0.36,d = 0.15。混合方法分析揭示了远程评估和面对面评估的独特益处和挑战,并表明这两种评估对照顾者来说都是可以接受的。结果为RISE CPP作为一种诊断工具提供了初步支持。远程管理可能会增加传统上在研究中服务不足和代表性不足的家庭在临床和研究诊断评估中的公平性。