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Educators Describe the "Best Things" About Students with Autism at School.教育工作者描述了自闭症学生在学校的“最美好”之处。
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The Brief Observation of Symptoms of Autism (BOSA): Development of a New Adapted Assessment Measure for Remote Telehealth Administration Through COVID-19 and Beyond.自闭症症状简要观察量表(BOSA):通过 COVID-19 及以后的远程远程医疗管理开发的新的适应性评估工具。
J Autism Dev Disord. 2022 Dec;52(12):5383-5394. doi: 10.1007/s10803-021-05395-w. Epub 2021 Dec 16.
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Advances in Behavioral Remote Data Collection in the Home Setting: Assessing the Mother-Infant Relationship and Infant's Adaptive Behavior via Virtual Visits.家庭环境中行为远程数据收集的进展:通过虚拟访视评估母婴关系和婴儿的适应性行为。
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Feasibility and acceptability of a telehealth model for autism diagnostic evaluations in children, adolescents, and adults.远程医疗模型用于儿童、青少年和成人自闭症诊断评估的可行性和可接受性。
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Disparities in digital access among American rural and urban households and implications for telemedicine-based services.美国农村和城市家庭在数字接入方面的差距及其对远程医疗服务的影响。
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Disparities in Technology and Broadband Internet Access Across Rurality: Implications for Health and Education.城乡间技术和宽带互联网接入的差距:对健康和教育的影响。
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采用以用户为中心的设计方法来开发一套用于研究幼儿社交沟通技能的远程技术工具包。

Employing user-centered design to develop a remote technology kit for studying young children's social communication skills.

作者信息

Petruccelli Marisa, Howard Mya, Morelos Andres, Wainer Allison, Broder-Fingert Sarabeth, Ingersoll Brooke, Stone Wendy L, Carter Alice S

机构信息

Department of Pediatrics, UMass Chan Medical School, Worcester, MA, United States.

Department of Human Services, University of Virginia, Charlottesville, VA, United States.

出版信息

J Pediatr Psychol. 2025 Jan 1;50(1):96-105. doi: 10.1093/jpepsy/jsae065.

DOI:10.1093/jpepsy/jsae065
PMID:39118192
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC11753867/
Abstract

OBJECTIVE

The COVID-19 pandemic required behavioral researchers to rapidly pivot to the implementation of remote study protocols to facilitate data collection. Remote implementation required robust and flexible research protocols including reliable audio/visual technology that met all the quality, security, and privacy hallmarks of lab-based equipment, while also being portable and usable by nontechnical staff and participants. The project's primary purpose was to develop a technology kit that could be deployed for data collection in homes with young children. The secondary objective was to determine the feasibility of the kit for use longitudinally across four disparate sites.

METHOD

User-centered design principles were employed in the development and implementation of a technology kit deployed across urban, suburban, and rural participant locations in four states. Preliminary feasibility and usability data were gathered to determine the reliability of the kit across three timepoints.

RESULTS

In study 1, a technology kit was constructed addressing all project needs including the provision of the internet to connect remotely with participants. Staff training protocols and participant-facing materials were developed to accompany deployment procedures. In study 2, data gathered in technology logs demonstrated successful capturing of video footage in 96% of opportunities with most technology challenges mitigated. Subsequent behavioral coding indicated 100% of captured assessment footage has been successfully coded to date. Moreover, participants needed less support for technology setup at their later timepoints, and staff rated the kit as highly usable.

CONCLUSION

This study offers a model for future development of technology use in remote community- and home-based pediatric research.

摘要

目的

新冠疫情要求行为研究人员迅速转向实施远程研究方案以促进数据收集。远程实施需要强大且灵活的研究方案,包括可靠的音频/视频技术,该技术要满足基于实验室的设备的所有质量、安全和隐私标准,同时还要便于携带,非技术人员和参与者也能使用。该项目的主要目的是开发一种可用于在有幼儿的家庭中进行数据收集的技术套件。次要目标是确定该套件在四个不同地点纵向使用的可行性。

方法

在开发和实施一个部署在四个州的城市、郊区和农村参与者地点的技术套件时采用了以用户为中心的设计原则。收集了初步的可行性和可用性数据,以确定该套件在三个时间点的可靠性。

结果

在研究1中,构建了一个满足所有项目需求的技术套件,包括提供互联网以便与参与者进行远程连接。制定了工作人员培训方案和面向参与者的材料以配合部署程序。在研究2中,技术日志中收集的数据表明,在96%的机会中成功捕获了视频片段,大多数技术挑战得到缓解。随后的行为编码表明,到目前为止,100%的捕获评估片段已成功编码。此外,参与者在后期时间点对技术设置的支持需求减少,工作人员对该套件的可用性评价很高。

结论

本研究为未来在偏远社区和家庭为基础的儿科研究中技术使用的发展提供了一个模型。