• 文献检索
  • 文档翻译
  • 深度研究
  • 学术资讯
  • Suppr Zotero 插件Zotero 插件
  • 邀请有礼
  • 套餐&价格
  • 历史记录
应用&插件
Suppr Zotero 插件Zotero 插件浏览器插件Mac 客户端Windows 客户端微信小程序
定价
高级版会员购买积分包购买API积分包
服务
文献检索文档翻译深度研究API 文档MCP 服务
关于我们
关于 Suppr公司介绍联系我们用户协议隐私条款
关注我们

Suppr 超能文献

核心技术专利:CN118964589B侵权必究
粤ICP备2023148730 号-1Suppr @ 2026

文献检索

告别复杂PubMed语法,用中文像聊天一样搜索,搜遍4000万医学文献。AI智能推荐,让科研检索更轻松。

立即免费搜索

文件翻译

保留排版,准确专业,支持PDF/Word/PPT等文件格式,支持 12+语言互译。

免费翻译文档

深度研究

AI帮你快速写综述,25分钟生成高质量综述,智能提取关键信息,辅助科研写作。

立即免费体验

Themes in daily life of adolescents and young adults with congenital bleeding disorders: a qualitative study.

作者信息

Limperg P, Peters M, Gibbons E, Coppens M, Valk C, Grootenhuis M, Haverman L

机构信息

Psychosocial Department, Emma Children's Hospital, AMC, Amsterdam, the Netherlands.

Department of Pediatric-Hematology, Emma Children's Hospital and Hemophilia Comprehensive Care Treatment Center, AMC, Amsterdam, the Netherlands.

出版信息

Haemophilia. 2016 Jul;22(4):e330-3. doi: 10.1111/hae.12961. Epub 2016 May 24.

DOI:10.1111/hae.12961
PMID:27217221
Abstract
摘要

相似文献

1
Themes in daily life of adolescents and young adults with congenital bleeding disorders: a qualitative study.先天性出血性疾病青少年和青年的日常生活主题:一项定性研究。
Haemophilia. 2016 Jul;22(4):e330-3. doi: 10.1111/hae.12961. Epub 2016 May 24.
2
Transition to self-management after pediatric heart transplant.小儿心脏移植后的自我管理过渡
Prog Transplant. 2014 Sep;24(3):226-33. doi: 10.7182/pit2014911.
3
Adapting a generic coping skills programme for adolescents with type 1 diabetes: a qualitative study.将通用应对技能方案改编为 1 型糖尿病青少年患者使用:一项定性研究。
J Health Psychol. 2012 Apr;17(3):313-23. doi: 10.1177/1359105311415559. Epub 2011 Jul 28.
4
Between invisible defects and visible impact: the life experiences of adolescents and young adults with congenital heart disease.在无形的缺陷与可见的影响之间:先天性心脏病青少年和青年的生活经历
J Adv Nurs. 2015 Mar;71(3):599-608. doi: 10.1111/jan.12546. Epub 2014 Oct 9.
5
Transition in young adults with spina bifida: a qualitative study.脊柱裂青年成人的转变:一项定性研究。
Child Care Health Dev. 2011 Nov;37(6):866-74. doi: 10.1111/j.1365-2214.2011.01329.x.
6
A qualitative study of adolescents with medically unexplained symptoms and their parents. Part 1: Experiences and impact on daily life.一项针对患有医学上无法解释症状的青少年及其父母的定性研究。第1部分:经历及其对日常生活的影响。
J Adolesc. 2015 Dec;45:307-16. doi: 10.1016/j.adolescence.2015.10.010. Epub 2015 Oct 31.
7
The bodily experience of cerebral palsy: a journey to self-awareness.脑瘫的身体体验:自我意识的旅程。
Disabil Rehabil. 2013;35(23):1981-90. doi: 10.3109/09638288.2013.770080. Epub 2013 Apr 24.
8
Factors impacting self-care for urinary incontinence.影响尿失禁自我护理的因素。
Urol Nurs. 2006 Feb;26(1):41-51.
9
Palliative care of children with brain tumors: a parental perspective.脑肿瘤患儿的姑息治疗:家长视角
Arch Pediatr Adolesc Med. 2010 Mar;164(3):225-30. doi: 10.1001/archpediatrics.2009.284.
10
Daily life for young adults who care for a person with mental illness: a qualitative study.照顾精神疾病患者的年轻人的日常生活:一项定性研究。
J Psychiatr Ment Health Nurs. 2012 Sep;19(7):610-7. doi: 10.1111/j.1365-2850.2011.01829.x. Epub 2011 Oct 6.

引用本文的文献

1
A qualitative study on the impact of bleeding disorders on the daily life of Dutch women.一项关于出血性疾病对荷兰女性日常生活影响的定性研究。
Womens Health (Lond). 2025 Jan-Dec;21:17455057251362582. doi: 10.1177/17455057251362582. Epub 2025 Aug 17.
2
Caregiver's experiences with a mobile-based educational program and its impact on dietary treatment compliance of children with methylmalonic acidemia: an online survey.照顾者参与基于移动设备的教育项目的经历及其对甲基丙二酸血症患儿饮食治疗依从性的影响:一项在线调查
Orphanet J Rare Dis. 2025 Jan 19;20(1):31. doi: 10.1186/s13023-025-03528-3.
3
Illness perceptions and their relation to physical activity in children and adolescents with hemophilia.
血友病儿童和青少年的疾病认知及其与身体活动的关系。
Health Psychol Behav Med. 2020 Oct 4;8(1):461-474. doi: 10.1080/21642850.2020.1823226.
4
The Perspectives of Adolescents and Young Adults on Adherence to Prophylaxis in Hemophilia: A Qualitative Study.青少年和青年对血友病预防治疗依从性的看法:一项定性研究
Patient Prefer Adherence. 2020 Jan 23;14:163-171. doi: 10.2147/PPA.S232393. eCollection 2020.
5
Professional functioning of young adults with congenital coagulation disorders in the Netherlands.荷兰先天性凝血障碍青年成年人的职业功能。
Haemophilia. 2019 May;25(3):e138-e145. doi: 10.1111/hae.13698. Epub 2019 Mar 12.
6
Balance, falls, and exercise: Beliefs and experiences in people with hemophilia: A qualitative study.平衡、跌倒与运动:血友病患者的信念与经历:一项定性研究
Res Pract Thromb Haemost. 2017 Dec 4;2(1):147-154. doi: 10.1002/rth2.12060. eCollection 2018 Jan.
7
Living with a rare disorder: a systematic review of the qualitative literature.与罕见疾病共存:对定性文献的系统综述
Mol Genet Genomic Med. 2017 Nov;5(6):758-773. doi: 10.1002/mgg3.315. Epub 2017 Jul 23.
8
Health-related quality of life, developmental milestones, and self-esteem in young adults with bleeding disorders.患有出血性疾病的青年的健康相关生活质量、发育里程碑和自尊。
Qual Life Res. 2018 Jan;27(1):159-171. doi: 10.1007/s11136-017-1696-0. Epub 2017 Sep 12.