Health Law Institute Faculty of Law University of Alberta Edmonton, AB Canada.
School of Linguistics and Language Studies Carleton University Ottawa, ON Canada.
JMIR Public Health Surveill. 2016 Mar 9;2(1):e8. doi: 10.2196/publichealth.5264. eCollection 2016 Jan-Jun.
Former Detroit Red Wing Gordie Howe received stem cell (SC) treatment in Mexico in December 2014 for a stroke he suffered in October 2014. The news about his positive response to the SC treatment prompted discussion on social networks like Twitter.
This study aims to provide information about discussions that took place on Twitter regarding Howe's SC treatment and SC treatment in general. In particular, this study examines whether tweets portrayed a positive or negative attitude towards Howe's SC treatment, whether or not tweets mention that the treatment is unproven, and whether the tweets mention risks associated with the SC treatment.
This is an infodemiology study, harnessing big data published on the Internet for public health research and analysis of public engagement. A corpus of 2783 tweets about Howe's SC treatment was compiled using a program that collected English-language tweets from December 19, 2014 at 00:00 to February 7, 2015 at 00:00. A content analysis of the corpus was conducted using a coding framework developed through a two-stage process.
78.87% (2195/2783) of tweets mentioned improvements to Howe's health. Only one tweet explicitly mentioned that Howe's SC treatment was unproven, and 3 tweets warned that direct-to-consumer SC treatments lacked scientific evidence. In addition, 10.31% (287/2783) of tweets mentioned challenges with SC treatment that have been raised by scientists and researchers, and 3.70% (103/2783) of tweets either defined Howe as a "stem cell tourist" or claimed that his treatment was part of "stem cell tourism". In general, 71.79% (1998/2783) of tweets portrayed a positive attitude towards Howe's SC treatment.
Our study found the responses to Howe's treatment on Twitter to be overwhelmingly positive. There was far less attention paid to the lack of scientific evidence regarding the efficacy of the treatment. Unbalanced and uncritical discussion on Twitter regarding SC treatments is another example of inaccurate representations of SC treatments that may create unrealistic expectations that will facilitate the market for unproven stem cell therapies.
前底特律红翼队队员 Gordie Howe 于 2014 年 12 月在墨西哥接受了干细胞(SC)治疗,此前他于 2014 年 10 月中风。有关他对 SC 治疗反应积极的消息在 Twitter 等社交网络上引发了讨论。
本研究旨在提供关于在 Twitter 上就 Howe 的 SC 治疗以及一般的 SC 治疗展开的讨论的信息。特别是,本研究考察了推文对 Howe 的 SC 治疗持积极还是消极的态度,是否提到该治疗未经证实,以及推文是否提到与 SC 治疗相关的风险。
这是一项信息流行病学研究,利用互联网上发布的大数据进行公共卫生研究和分析公众参与度。使用一种程序从 2014 年 12 月 19 日 00:00 到 2015 年 2 月 7 日 00:00 收集了有关 Howe 的 SC 治疗的 2783 条英语推文,编制了一个语料库。通过一个分两个阶段制定的编码框架对语料库进行了内容分析。
78.87%(2195/2783)的推文提到 Howe 的健康状况有所改善。只有一条推文明确提到 Howe 的 SC 治疗未经证实,有 3 条推文警告说,直接面向消费者的 SC 治疗缺乏科学证据。此外,10.31%(287/2783)的推文提到了科学家和研究人员提出的 SC 治疗面临的挑战,3.70%(103/2783)的推文将 Howe 定义为“干细胞游客”或声称他的治疗属于“干细胞旅游”。总的来说,71.79%(1998/2783)的推文对 Howe 的 SC 治疗持积极态度。
我们的研究发现,Twitter 上对 Howe 治疗的反应非常积极。几乎没有关注该治疗的疗效缺乏科学证据的问题。Twitter 上对 SC 治疗的不平衡和不加批判的讨论是对 SC 治疗不准确描述的另一个例子,这可能会造成不切实际的期望,从而为未经证实的干细胞疗法创造市场。