Morris Sue E, Dole Olivia R, Joselow Marsha, Duncan Janet, Renaud Kristen, Branowicki Patricia
J Pediatr Health Care. 2017 Jan-Feb;31(1):88-95. doi: 10.1016/j.pedhc.2016.04.013. Epub 2016 May 25.
Although grief is a normal response to loss, the death of a child is believed to be one of the most difficult losses a person can endure, and bereaved parents are considered to be an "at-risk" group. Even though most deaths of children in the United States occur in hospitals, bereavement care provided by hospitals is highly variable, and little attention has been directed to how hospitals can best support grieving parents. In this article, we describe the development of a hospital-wide bereavement program at Boston Children's Hospital, where we conceptualize bereavement care as a preventive model of care. We identify the primary constructs of the program as education, guidance, and support and outline a template for use by other hospitals. We recommend that all pediatric hospitals implement basic, coordinated bereavement programs as the standard of care to ensure that all families receive bereavement care after the death of a patient.
尽管悲伤是对丧失的正常反应,但孩子的死亡被认为是一个人所能承受的最艰难的丧失之一,失去孩子的父母被视为“高危”群体。尽管美国大多数儿童死亡发生在医院,但医院提供的丧亲护理差异很大,而且很少有人关注医院如何才能最好地支持悲伤的父母。在本文中,我们描述了波士顿儿童医院全院丧亲护理项目的发展情况,在那里我们将丧亲护理概念化为一种预防性护理模式。我们确定该项目的主要构成要素为教育、指导和支持,并概述了一个供其他医院使用的模板。我们建议所有儿科医院实施基本的、协调一致的丧亲护理项目,作为护理标准,以确保所有家庭在患者死亡后都能获得丧亲护理。