1 Department of Anesthesiology (Palliative Care), Cincinnati Children's Hospital Medical Center , Cincinnati, Ohio.
2 Department of Pediatrics, Cincinnati Children's Hospital Medical Center , Cincinnati, Ohio.
J Palliat Med. 2018 Oct;21(10):1414-1435. doi: 10.1089/jpm.2018.0056. Epub 2018 Jun 29.
In 2017, the Ohio Pediatric Palliative Care and End-of-Life Network (OPPEN) published nine domains of high-quality care for pediatric home-based hospice and palliative care (HBHPC). Eight domains established by the National Consensus Project (NCP) were validated for pediatric HBHPC, and a ninth domain of "Continuity and Coordination of Care" was added.
The aim of this study was to establish definition criteria for each of these domains.
Using a modified Delphi technique, providers from the OPPEN were surveyed regarding definitions drawn from the NCP domain criteria. For the ninth domain, new definition criteria were generated de novo based on qualitative responses.
Definition criteria were established for the nine domains of quality in HBHPC previously identified. In the course of analysis, Bereavement Care was established as a 10th domain of quality, and definition criteria generated.
This is the first study to define domains of quality for pediatric HBHPC, and the second to leverage the infrastructure of a pediatric HPC statewide consortium toward this work. Future studies are needed to establish parent and patient-prioritized domains of quality in pediatric HBHPC, and to map indicators validated in pediatrics to these domains.
2017 年，俄亥俄州儿科姑息治疗和临终关怀网络（OPPEN）发布了九条高质量儿科家庭临终关怀和姑息治疗（HBHPC）护理标准。其中八个标准是在国家共识项目（NCP）中确立的，用于儿科 HBHPC，此外还增加了第九个“护理的连续性和协调性”标准。
本研究旨在为这些标准中的每一个建立定义标准。
利用改良 Delphi 技术，对来自 OPPEN 的提供者进行调查，以了解源自 NCP 标准的定义。对于第九个标准，根据定性回答生成了新的定义标准。
确定了之前确定的 HBHPC 九条质量标准的定义标准。在分析过程中，丧亲关怀被确立为第十个质量标准，并生成了定义标准。
这是第一项为儿科 HBHPC 定义质量标准的研究，第二项利用儿科 HPC 全州联盟的基础设施来开展这项工作。未来的研究需要建立儿科 HBHPC 中父母和患者优先考虑的质量标准，并将在儿科中验证的指标映射到这些标准中。
