阿尔茨海默病英语在线测试的科学与伦理特征
Scientific and ethical features of English-language online tests for Alzheimer's disease.
作者信息
Robillard Julie M, Illes Judy, Arcand Marcel, Beattie B Lynn, Hayden Sherri, Lawrence Peter, McGrenere Joanna, Reiner Peter B, Wittenberg Dana, Jacova Claudia
机构信息
National Core for Neuroethics, Division of Neurology, Department of Medicine, Faculty of Medicine, University of British Columbia, Djavad Mowafaghian Centre for Brain Health, Vancouver, BC, Canada.
National Core for Neuroethics, Division of Neurology, Department of Medicine, Faculty of Medicine, University of British Columbia, UBC Hospital, Vancouver, BC, Canada.
出版信息
Alzheimers Dement (Amst). 2015 Jul 2;1(3):281-8. doi: 10.1016/j.dadm.2015.03.004. eCollection 2015 Sep.
INTRODUCTION
Freely accessible online tests for the diagnosis of Alzheimer's disease (AD) are widely available. The objective of this study was to evaluate these tests along three dimensions as follows: (1) scientific validity; (2) human-computer interaction (HCI) features; and (3) ethics features.
METHODS
A sample of 16 online tests was identified through a keyword search. A rating grid for the tests was developed, and all tests were evaluated by two expert panels.
RESULTS
Expert analysis revealed that (1) the validity of freely accessible online tests for AD is insufficient to provide useful diagnostic information; (2) HCI features of the tests are adequate for target users, and (3) the tests do not adhere to accepted ethical norms for medical interventions.
DISCUSSION
The most urgent concerns raised center on the ethics of collecting and evaluating responses from users. Physicians and other professionals will benefit from a heightened awareness of these tools and their limitations today.
引言
用于诊断阿尔茨海默病（AD）的免费在线测试广泛可得。本研究的目的是从以下三个维度评估这些测试：（1）科学有效性；（2）人机交互（HCI）特征；以及（3）伦理特征。
方法
通过关键词搜索确定了16个在线测试样本。制定了测试评分标准，并由两个专家小组对所有测试进行评估。
结果
专家分析表明：（1）免费在线AD测试的有效性不足以提供有用的诊断信息；（2）测试的人机交互特征对目标用户来说是足够的；（3）这些测试未遵循公认的医疗干预伦理规范。
讨论
最紧迫的问题集中在收集和评估用户回答的伦理方面。如今，医生和其他专业人员将受益于对这些工具及其局限性更高的认识。
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