Bauer Michael, Glenn Tasha, Monteith Scott, Bauer Rita, Whybrow Peter C, Geddes John
Department of Psychiatry and Psychotherapy, Universitätsklinikum Carl Gustav Carus, Technische Universität Dresden, Fetscherstr. 74, 01307, Dresden, Germany.
ChronoRecord Association, Inc., Fullerton, CA, 92834, USA.
Int J Bipolar Disord. 2017 Dec;5(1):6. doi: 10.1186/s40345-017-0073-9. Epub 2017 Feb 7.
The digital revolution in medicine not only offers exciting new directions for the treatment of mental illness, but also presents challenges to patient privacy and security. Changes in medicine are part of the complex digital economy based on creating value from analysis of behavioral data acquired by the tracking of daily digital activities. Without an understanding of the digital economy, recommending the use of technology to patients with mental illness can inadvertently lead to harm. Behavioral data are sold in the secondary data market, combined with other data from many sources, and used in algorithms that automatically classify people. These classifications are used in commerce and government, may be discriminatory, and result in non-medical harm to patients with mental illness. There is also potential for medical harm related to poor quality online information, self-diagnosis and self-treatment, passive monitoring, and the use of unvalidated smartphone apps. The goal of this paper is to increase awareness and foster discussion of the new ethical issues. To maximize the potential of technology to help patients with mental illness, physicians need education about the digital economy, and patients need help understanding the appropriate use and limitations of online websites and smartphone apps.
医学领域的数字革命不仅为精神疾病的治疗提供了令人兴奋的新方向,也给患者隐私和安全带来了挑战。医学变革是复杂数字经济的一部分,这种经济基于通过追踪日常数字活动获取的行为数据进行分析来创造价值。如果不了解数字经济,向精神疾病患者推荐使用技术可能会无意中造成伤害。行为数据在二级数据市场出售,与来自许多来源的其他数据相结合,并用于自动对人进行分类的算法中。这些分类被用于商业和政府领域,可能具有歧视性,并会给精神疾病患者带来非医疗伤害。与质量不佳的在线信息、自我诊断和自我治疗、被动监测以及使用未经验证的智能手机应用程序相关的医疗伤害也存在可能性。本文的目的是提高人们对这些新伦理问题的认识并促进相关讨论。为了最大限度地发挥技术帮助精神疾病患者的潜力,医生需要接受有关数字经济的教育,患者需要得到帮助以了解在线网站和智能手机应用程序的适当使用方法及局限性。