Parke Ii D W, Lum F, Rich W L
American Academy of Ophthalmology, 655 Beach Street, 94120-7424, San Francisco, Kalifornien, USA.
Ophthalmologe. 2016 Jun;113(6):463-8. doi: 10.1007/s00347-016-0300-2.
The American Academy of Ophthalmology IRIS® Registry (Intelligent Research in Sight) launched about 2 years ago and has already become the largest national clinical specialty data registry with nearly 50 million patient visits and over 14 million unique patients. The purpose of the registry is to support and promote continued improvement in the delivery of eye care. The perspectives that "big data" encompass are the key issues facing ophthalmology and eye care, including public health and public policy concerning disease incidence and prevalence, utilization of eye care services, natural history of disease, disease surveillance, comparative effectiveness, safety and adverse event monitoring, compliance with "best practices" and clinical guidelines, etc. The valuable real-world and current-day insights provided by the IRIS Registry and other registries like it will accelerate scientific learning and improvements in care delivery, particularly in a cost-constrained environment.
美国眼科学会IRIS®注册库（视力智能研究）于约两年前启动，现已成为最大的全国性临床专科数据注册库，有近5000万次患者就诊记录和超过1400万不同患者。该注册库的目的是支持并促进眼科护理服务持续改进。“大数据”涵盖的观点是眼科和眼保健面临的关键问题，包括有关疾病发病率和患病率的公共卫生与公共政策、眼科护理服务的利用情况、疾病自然史、疾病监测、比较疗效、安全性和不良事件监测、遵循“最佳实践”和临床指南等。IRIS注册库及类似的其他注册库提供的宝贵的现实世界和当下见解将加速科学认知并改善护理服务，尤其是在成本受限的环境中。
