Gerritsen Debby L, Oyebode Jan, Gove Dianne
Department of Primary and Community Care, Radboud University Medical Centre Nijmegen; Radboudumc Alzheimer Centre; Joachim en Anna, centre for specialized geriatric care, Nijmegen, the Netherlands.
School of Dementia Studies, University of Bradford, Bradford, BD7 1DP, UK.
Dementia (London). 2018 Jul;17(5):596-608. doi: 10.1177/1471301216654036. Epub 2016 Jun 10.
The way we perceive and portray dementia has implications for how we act towards people with dementia and how we address the issue of dementia within society. As a multi-disciplinary working group, established within the framework of the European Dementia Ethics Network of Alzheimer Europe, we aimed to describe the different ways that people with dementia are perceived and portrayed within society and to consider the moral implications of this. In the current paper, we address perceptions of dementia as reflected in explanatory models of its cause and nature, descriptions of characteristics of people with dementia, the use of language, media portrayals and the views of people living with dementia. Academics and professionals could use this exploration to reflect on their behaviour and their use of language regarding people with dementia.
我们对痴呆症的认知和描绘方式，会影响我们对待痴呆症患者的行为，以及我们在社会中处理痴呆症问题的方式。作为一个在欧洲阿尔茨海默病协会欧洲痴呆症伦理网络框架内成立的多学科工作小组，我们旨在描述社会中人们对痴呆症患者的不同认知和描绘方式，并思考其道德影响。在本文中，我们探讨了在痴呆症病因和本质的解释模型、对痴呆症患者特征描述、语言使用、媒体描绘以及痴呆症患者自身观点中所反映出的对痴呆症的认知。学者和专业人士可以利用这一探索来反思他们对待痴呆症患者的行为和语言使用。
