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《与痴呆症共舞:通过与社会环境的互动获得力量》

Living Well with Dementia: Feeling Empowered through Interaction with Their Social Environment.

机构信息

St. Hedwig Kliniken Berlin, Alexianer Krankenhaus Hedwigshoehe, Berlin 12526, Germany.

Fundación INTRAS, INTRAS Neuropsychology Clinic, 47016 Valladolid, Spain.

出版信息

Int J Environ Res Public Health. 2023 Jun 8;20(12):6080. doi: 10.3390/ijerph20126080.

Abstract

This study was designed to advance our understanding of how feelings of empowerment in people living with dementia still residing at home can be promoted. We conducted qualitative interviews with 12 participants with mild-to-moderate stages of dementia in Germany and Spain as part of a European study on mindful design for dementia. A qualitative thematic content analysis was performed to elicit the key features of the experience reported by the interviewees. Three overarching categories were identified: the first category 'experiencing changes in personal life and coping with changes in life' covered losses and coping strategies; the second category 'retaining a sense of usefulness' included social participation and the need for activities with others; the third category 'feeling empowered' covered reflections on lifetime achievements, accomplishments in the present life, being in control and self-worth. Participants placed a strong emphasis on continuity and on the importance of making active decisions and meaningful social contributions. Empowerment within the person living with dementia was achieved through their interactions with their social environment, including the significance of communication about their needs and wishes and enabling shared decision-making and interactions with others in reciprocity.

摘要

本研究旨在增进我们对于如何增强居家轻至中度痴呆症患者的赋权感的理解。我们在德国和西班牙开展了一项定性访谈,对象为参与欧洲正念设计预防痴呆症研究的 12 名轻度至中度痴呆症患者。我们采用定性主题内容分析法来挖掘受访者所报告经历的关键特征。确定了三个总体类别:第一类“体验个人生活的变化和应对生活的变化”涵盖了损失和应对策略;第二类“保持有用感”包括社会参与和与他人一起活动的需求;第三类“赋权感”涵盖了对一生成就、当前生活中的成就、掌控感和自我价值感的反思。参与者非常强调连续性以及积极决策和有意义的社会贡献的重要性。通过与社会环境的互动,包括沟通需求和意愿以及支持共同决策和互惠的互动,使痴呆症患者获得赋权。

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