Discipline of Speech and Language Therapy, 8799NUI Galway, Galway, Ireland.
Speech and Language Therapy, 8004Carlow/Kilkenny Health Services Executive (HSE), Carlow, Ireland.
Dementia (London). 2022 May;21(4):1343-1362. doi: 10.1177/14713012221077526. Epub 2022 Mar 30.
The aims of the study were to explore what personal narratives in Irish broadsheet and tabloid newspapers reveal about the lived experience of people with dementia. The sample included twenty narratives collected from five Irish newspapers between 2011 and 2017 inclusively. The relative absence of narratives of people with dementia in Irish newspapers is shown as only twelve of the twenty narratives contained the voice of the person with dementia themselves. Inductive analysis and thematic analysis generated four main themes with a total of thirteen subthemes. The main themes are: (1) Dementia as a personal journey, (2) stereotypes and stigma, (3) barriers and (4) awareness. This study highlights the under-representation of personal narratives of people with dementia in Irish newspapers which is seen as a contributing factor in the lack of understanding and awareness of dementia in society in general. Exploring mediated representations of the lived experience of people with dementia through personal narratives provides insight into the naturalised discourses of dementia which impact on people's lived experiences. (172).
本研究旨在探讨爱尔兰大报和小报中的个人叙事如何揭示痴呆症患者的生活体验。样本包括 2011 年至 2017 年期间从五家爱尔兰报纸收集的二十个叙事。爱尔兰报纸中痴呆症患者的叙事相对较少,只有二十个叙事中有十二个人是痴呆症患者本人的声音。归纳分析和主题分析产生了四个主题,共十三个子主题。主要主题是:(1)痴呆症作为个人的旅程,(2)刻板印象和耻辱,(3)障碍和(4)意识。本研究强调了爱尔兰报纸中痴呆症患者个人叙事的代表性不足,这被认为是导致社会普遍对痴呆症缺乏理解和认识的一个因素。通过个人叙事探索痴呆症患者生活体验的中介表现形式,可以深入了解影响人们生活体验的痴呆症的自然话语。(172)。