Sierakowska Matylda, Klepacka Małgorzata, Sierakowski Stanisław Józef, Pawlak-Buś Katarzyna, Leszczyński Piotr, Majdan Maria, Olesińska Marzena, Romanowski Wojciech, Bykowska-Sochacka Małgorzata, Jeka Sławomir, Sierakowska Justyna Anna, Ndosi Mwidimi, Krajewska-Kułak Elżbieta
Department of Integrated Medical Care, Medical University of Bialystok, Poland.
Department of Nephrology, Medical University of Bialystok, Poland.
Ann Agric Environ Med. 2016 Jun 2;23(2):361-7. doi: 10.5604/12321966.1203906.
Patients with chronic rheumatoid arthritis (RA) need advice in order to face the problems of everyday life, as well as suffering associated with the disease. Health professionals should attempt to raise the level of resourcefulness and independence of the patient.
To assess the relationship between the deficit of knowledge about RA and the degree of pain, fatigue, morning stiffness, assessment of disease activity as well as functional efficiency.
The study was conducted on 277 patients with RA in 7 rheumatologic centres in Poland. The method applied was the questionnaire Pol-ENAT (0-156); HAQ DI (0-3); analog scales (0-100).
Mean (SD) age was 53.28 (13.01) and disease duration 13.70 (10.63) years. The mean (SD) value was 54.93 (23.17) for pain, 52.97 (21.98) for fatigue, 48.28 (24.76) for morning stiffness (0-100 mm). HAQ DI was 1.40 (0.66), with an upward trend with duration of disease (p<0.001). There was a positive correlation between the demand for knowledge about the movement (r=0.194; p=0.001), self-care (r=0.134; p=0.026), assistance/support(r =0.163; p=0.006) and morning stiffness experienced. There was a negative correlation between the need for knowledge concerning managing pain, feelings and the arthritis process and daily ability assessed with HAQ DI.
The study shows that health education should be targeted at young patients with early RA. In the case of the severity of morning joints stiffness, there is a need to increase knowledge about the methods of mobility aids, self-care and the possibility of obtaining support.
慢性类风湿关节炎(RA)患者在面对日常生活问题以及与疾病相关的痛苦时需要得到建议。卫生专业人员应努力提高患者的应变能力和独立性。
评估类风湿关节炎知识 deficit 与疼痛程度、疲劳、晨僵、疾病活动度评估以及功能效率之间的关系。
该研究在波兰7个风湿病中心的277例类风湿关节炎患者中进行。采用的方法是Pol-ENAT问卷(0 - 156);健康评估问卷残疾指数(HAQ DI,0 - 3);视觉模拟量表(0 - 100)。
平均(标准差)年龄为53.28(13.01)岁,病程为13.70(10.63)年。疼痛的平均(标准差)值为54.(23.17),疲劳为52.97(21.98),晨僵为48.28(24.76)(0 - 100毫米)。HAQ DI为1.40(0.66),且随病程呈上升趋势(p<0.001)。关于运动知识的需求(r = 0.194;p = 0.001)、自我护理(r = 0.134;p = 0.026)、协助/支持(r = 0.163;p = 0.006)与所经历的晨僵之间存在正相关。关于疼痛管理、情绪和关节炎进程的知识需求与用HAQ DI评估的日常能力之间存在负相关。
该研究表明,健康教育应针对早期类风湿关节炎的年轻患者。对于晨僵的严重程度,有必要增加关于移动辅助工具方法、自我护理以及获得支持可能性的知识。