Shabalala Fortunate, De Lannoy Ariane, Moyer Eileen, Reis Ria
a Amsterdam Institute for Social Science Research , University of Amsterdam , Amsterdam , The Netherlands.
b Faculty of Health Sciences, Department of Community Health Nursing Sciences , University of Swaziland , Mbabane , Swaziland.
AIDS Care. 2016;28 Suppl 4:8-17. doi: 10.1080/09540121.2016.1195482. Epub 2016 Jun 17.
Drawing from 18 months of ethnographic fieldwork in one urban and one rural setting in Swaziland, involving 13 case studies of adolescents living with HIV, in this article we explore the meaning of the family as it applies to Swazi adolescents' everyday life. Our findings suggest that the meaning of the family is constantly evolving and transforming based on changing needs of, and expectations by, adolescents in different contexts and moments of the care continuum. Central to the meaning of the family is a strong desire for belonging - that is, being accepted, welcomed and appreciated. Traditional institutions that used to regulate where children belong still shape adolescents' perceptions, hopes and desires, but may also prevent their realisation. Support groups are important but do not substitute for the familial belongings adolescents living with HIV have lost, and long for. Policymakers, programme managers and health providers working with adolescents living with HIV need to embrace the complexity and dynamism of the meaning of family and base their policies, programmes, standards and guidelines not only on the factual care arrangements that adolescents find themselves in, nor on legal definitions of rights and responsibilities, but also on what adolescents want.
本文基于在斯威士兰一个城市和一个农村地区进行的为期18个月的人种志田野调查，涉及13个感染艾滋病毒青少年的案例研究，探讨了家庭在斯威士兰青少年日常生活中的意义。我们的研究结果表明，家庭的意义会根据青少年在不同背景和护理连续过程中的不同时刻不断演变和转变。家庭意义的核心是对归属感的强烈渴望——即被接受、欢迎和欣赏。过去用于规范孩子归属的传统机构仍然塑造着青少年的认知、希望和愿望，但也可能阻碍这些愿望的实现。支持小组很重要，但无法替代感染艾滋病毒的青少年失去且渴望的家庭归属感。与感染艾滋病毒的青少年打交道的政策制定者、项目管理人员和医疗服务提供者需要认识到家庭意义的复杂性和动态性，并将他们的政策、项目、标准和指导方针不仅建立在青少年实际所处的护理安排上，也不仅基于权利和责任的法律定义，还应基于青少年的需求。
