Mouton Dorey Corine
Institute of Biomedical Ethics and History of Medicine, University of Zurich, Winterthurerstrasse 30, 8006, Zurich, Switzerland.
Med Health Care Philos. 2016 Dec;19(4):531-543. doi: 10.1007/s11019-016-9713-6.
The increased complexity of health information management sows the seeds of inequalities between health care stakeholders involved in the production and use of health information. Patients may thus be more vulnerable to use of their data without their consent and breaches in confidentiality. Health care providers can also be the victims of a health information system that they do not fully master. Yet, despite its possible drawbacks, the management of health information is indispensable for advancing science, medical care and public health. Therefore, the central question addressed by this paper is how to manage health information ethically? This article argues that Paul Ricœur's "little ethics", based on his work on hermeneutics and narrative identity, provides a suitable ethical framework to this end. This ethical theory has the merit of helping to harmonise self-esteem and solicitude amongst patients and healthcare providers, and at the same time provides an ethics of justice in public health. A matrix, derived from Ricœur's ethics, has been developed as a solution to overcoming possible conflicts between privacy interests and the common good in the management of health information.
健康信息管理复杂性的增加,埋下了参与健康信息生产和使用的医疗保健利益相关者之间不平等的种子。因此,患者可能更容易在未经其同意的情况下其数据被使用,以及保密性遭到侵犯。医疗保健提供者也可能成为他们并未完全掌握的健康信息系统的受害者。然而,尽管健康信息管理可能存在弊端,但对于推动科学、医疗保健和公共卫生而言,它却是不可或缺的。因此,本文所探讨的核心问题是如何以合乎伦理的方式管理健康信息?本文认为,保罗·利科基于其诠释学和叙事身份研究的“小伦理学”为此提供了一个合适的伦理框架。这一伦理理论有助于协调患者与医疗保健提供者之间的自尊与关怀,同时还提供了一种公共卫生正义伦理。源自利科伦理学的一个矩阵已被开发出来,作为解决健康信息管理中隐私利益与共同利益之间可能冲突的一种方案。