Grumme Valarie S, Gordon Shirley C
Author Affiliations: Christine E. Lynn College of Nursing, Florida Atlantic University, Boca Raton.
Comput Inform Nurs. 2016 Dec;34(12):570-577. doi: 10.1097/CIN.0000000000000276.
Transplant recipients use a diverse support network that now includes transplant-related social media support groups. The purpose of this study is to explore the use of social media sites by transplant recipients as a potential source of support and healing and the usefulness of Internet postings as a source of rich qualitative data. A qualitative descriptive design was used for the study. A total of 126 retrospective postings from 58 participants were analyzed as they existed on this open publically available Web site over a 20-month period from the selected discussion threads. Two major themes emerged from the data: sharing overwhelming gratitude and finding sanctuary. Sharing overwhelming gratitude was expressed in emotional postings about feelings and letters to donor families. Finding sanctuary described the recipients' perception of the online community as a safe and nonjudgmental environment to discuss sensitive issues and feelings. This study adds to what is known about the unique psychological and emotional needs of transplant recipients. Transplant-related support Web sites offer the opportunity to learn what matters most to transplant recipients and identify gaps in care related to calls for nursing.
移植受者使用多样化的支持网络，如今这一网络包括与移植相关的社交媒体支持群组。本研究的目的是探讨移植受者对社交媒体网站的使用情况，将其作为潜在的支持与康复来源，以及互联网帖子作为丰富定性数据来源的有用性。本研究采用定性描述性设计。从选定的讨论线程中，在20个月的时间里，对该公开可用网站上58名参与者的126条回顾性帖子进行了分析。数据中出现了两个主要主题：表达极度感激之情和寻求庇护所。表达极度感激之情体现在关于感受的情感帖子以及给捐赠者家庭的信件中。寻求庇护所描述了受者将在线社区视为一个安全且无评判的环境，可用于讨论敏感问题和感受。本研究补充了关于移植受者独特心理和情感需求的现有知识。与移植相关的支持网站提供了一个机会，可了解对移植受者最重要的事情，并识别与护理需求相关的护理差距。
