Archibald Daryll, Patterson Rebecca, Haraldsdottir Erna, Hazelwood Mark, Fife Shirley, Murray Scott A
Scottish Collaboration for Public Health Research & Policy (SCPHRP) Centre, University of Edinburgh, Edinburgh, UK.
Scottish Partnership for Palliative Care, Edinburgh, UK.
BMJ Open. 2016 Jul 14;6(7):e012058. doi: 10.1136/bmjopen-2016-012058.
Public health palliative care is a term that can be used to encompass a variety of approaches that involve working with communities to improve people's experience of death, dying and bereavement. Recently, public health palliative care approaches have gained recognition and momentum within UK health policy and palliative care services. There is general consensus that public health palliative care approaches can complement and go beyond the scope of formal service models of palliative care. However, there is no clarity about how these approaches can be undertaken in practice or how evidence can be gathered relating to their effectiveness. Here we outline a scoping review protocol that will systematically map and categorise the variety of activities and programmes that could be classified under the umbrella term 'public health palliative care' and highlight the impact of these activities where measured.
This review will be guided by Arksey and O'Malley's scoping review methodology and incorporate insights from more recent innovations in scoping review methodology. Sensitive searches of 9 electronic databases from 1999 to 2016 will be supplemented by grey literature searches. Eligible studies will be screened independently by two reviewers using a data charting tool developed for this scoping review.
This scoping review will undertake a secondary analysis of data already collected and does not require ethical approval. The results will facilitate better understanding of the practical application of public health approaches to palliative care, the impacts these activities can have and how to build the evidence base for this work in future. The results will be disseminated through traditional academic routes such as conferences and journals and also policy and third sector seminars.
公共卫生姑息治疗是一个可用于涵盖多种方法的术语，这些方法涉及与社区合作，以改善人们在死亡、临终和丧亲方面的体验。最近，公共卫生姑息治疗方法在英国卫生政策和姑息治疗服务中得到了认可并获得了发展动力。人们普遍认为，公共卫生姑息治疗方法可以补充并超越姑息治疗正式服务模式的范围。然而，对于这些方法在实践中如何实施，或者如何收集有关其有效性的证据，目前尚不清楚。在此，我们概述了一项范围综述方案，该方案将系统地梳理和分类可归类于“公共卫生姑息治疗”这一总括性术语下的各种活动和项目，并突出这些活动在有测量的情况下所产生的影响。
本综述将以阿克西和奥马利的范围综述方法为指导，并纳入范围综述方法最新创新的见解。对1999年至2016年9个电子数据库进行的敏感搜索将辅以灰色文献搜索。符合条件的研究将由两名评审员使用为此范围综述开发的数据图表工具独立筛选。
本范围综述将对已收集的数据进行二次分析，无需伦理批准。研究结果将有助于更好地理解公共卫生方法在姑息治疗中的实际应用、这些活动可能产生的影响以及如何在未来为这项工作建立证据基础。研究结果将通过会议和期刊等传统学术途径以及政策和第三部门研讨会进行传播。
