Tonorezos Emily S, Henderson Tara O
Departments of Medicine, Memorial Sloan Kettering and Weill Cornell Medical College, 300 East 66th Street, New York, NY 10065, USA.
University of Chicago Medicine Comer Children's Hospital, 5841 S. Maryland Avenue, MC 4060, Chicago, IL 60637, USA.
Children (Basel). 2014 Sep 12;1(2):227-40. doi: 10.3390/children1020227.
The Long-Term Follow-Up Guidelines for survivors of childhood, adolescent, and young adult cancers are evidence- and consensus-based guidelines that have been developed and published by the Children's Oncology Group (COG) Late Effects Committee, Nursing Discipline, and the Patient Advocacy Committee. Originally published in 2004, the guidelines are currently in version 3.0. While the COG guidelines have been praised as a model for providing risk-based survivorship care, adherence has not been uniform. Reasons for this gap include unawareness on the part of the survivor and/or care team as well as disagreement about the individual recommendations. In some cases, the burden of testing (such as annual echocardiography or repeat pulmonary function testing) may be too great. A small number of intervention studies have documented improved adherence to guideline recommendations with dissemination of informational material. Future studies should focus on individualizing screening recommendations, as well as identifying unnecessary testing.
儿童、青少年和青年癌症幸存者的长期随访指南是基于证据和共识制定的指南，由儿童肿瘤学组（COG）迟发效应委员会、护理学科和患者权益倡导委员会制定并发布。该指南最初于2004年发布，目前为3.0版本。虽然COG指南被誉为提供基于风险的生存护理的典范，但遵循情况并不统一。造成这种差距的原因包括幸存者和/或护理团队缺乏认识，以及对个别建议存在分歧。在某些情况下，检测负担（如每年进行超声心动图检查或重复肺功能测试）可能过重。少数干预研究记录了通过传播信息材料可提高对指南建议的遵循率。未来的研究应侧重于使筛查建议个性化，以及识别不必要的检测。
