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小儿球孢子菌病患者:认知、生活质量及社会心理因素

Pediatric Coccidioidomycosis Patients: Perceptions, Quality of Life and Psychosocial Factors.

作者信息

Gaab Erin Mary, Naeem Fouzia

机构信息

Health Sciences Research Institute, University of California, Merced, CA 95343, USA.

Valley Children's Hospital, 9300 Valley Children's Pl, Madera, CA 93636, USA.

出版信息

Healthcare (Basel). 2015 Aug 28;3(3):775-95. doi: 10.3390/healthcare3030775.

DOI:10.3390/healthcare3030775
PMID:27417796
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC4939562/
Abstract

Research investigating the effects of coccidioidomycosis (valley fever) on children and the psychosocial implications of this disease in general is lacking. This study reviews what is known about pediatric coccidioidomycosis patients. It documents the psychological functioning, quality of life, and illness perceptions of a sample of coccidioidomycosis patient families. Primary caregivers of pediatric patients and patients from a major hospital in the San Joaquin Valley of California were interviewed regarding their perceptions of disease detection, access to care and the patient/family experience.

摘要

关于球孢子菌病(山谷热)对儿童的影响以及该疾病总体上的社会心理影响的研究尚缺。本研究回顾了关于小儿球孢子菌病患者的已知情况。它记录了一组球孢子菌病患者家庭的心理功能、生活质量和疾病认知。针对加利福尼亚州圣华金谷一家主要医院的儿科患者的主要护理人员和患者,就他们对疾病检测、获得护理的机会以及患者/家庭经历的看法进行了访谈。

https://cdn.ncbi.nlm.nih.gov/pmc/blobs/35fb/4939562/f5997a9eefe7/healthcare-03-00775-g005.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/35fb/4939562/549fc5f5c7e5/healthcare-03-00775-g001.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/35fb/4939562/5bfb0729e417/healthcare-03-00775-g002.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/35fb/4939562/98fa4a86c42b/healthcare-03-00775-g003.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/35fb/4939562/46930a51e389/healthcare-03-00775-g004.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/35fb/4939562/f5997a9eefe7/healthcare-03-00775-g005.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/35fb/4939562/549fc5f5c7e5/healthcare-03-00775-g001.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/35fb/4939562/5bfb0729e417/healthcare-03-00775-g002.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/35fb/4939562/98fa4a86c42b/healthcare-03-00775-g003.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/35fb/4939562/46930a51e389/healthcare-03-00775-g004.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/35fb/4939562/f5997a9eefe7/healthcare-03-00775-g005.jpg

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本文引用的文献

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Valley fever: danger lurking in a dust cloud.山谷热:暗藏于尘雾中的危险。
Microbes Infect. 2014 Aug;16(8):591-600. doi: 10.1016/j.micinf.2014.06.011. Epub 2014 Jul 16.
2
Pediatric coccidioidomycosis in central California: a retrospective case series.加利福尼亚中部儿童球孢子菌病:一项回顾性病例系列研究。
Clin Infect Dis. 2013 Jun;56(11):1579-85. doi: 10.1093/cid/cit114. Epub 2013 Mar 5.
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Coccidioidomycosis during pregnancy: a review and recommendations for management.妊娠期球孢子菌病:综述与管理建议。
Clin Infect Dis. 2011 Aug;53(4):363-8. doi: 10.1093/cid/cir410.
4
Hospitalizations for coccidioidomycosis at forty-one children's hospitals in the United States.美国 41 家儿童医院的球孢子菌病住院治疗情况。
Pediatr Infect Dis J. 2010 Mar;29(3):243-7. doi: 10.1097/INF.0b013e3181bcfd7f.
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Itraconazole treatment of nonmeningeal coccidioidomycosis in children: two case reports and review of the literature.伊曲康唑治疗儿童非脑膜性球孢子菌病:两例病例报告及文献复习。
Pediatr Infect Dis J. 2010 Jan;29(1):65-7. doi: 10.1097/INF.0b013e3181b20ebd.
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Quality of life in children with heart disease as perceived by children and parents.儿童和家长所感知的心脏病患儿的生活质量。
Pediatrics. 2008 May;121(5):e1060-7. doi: 10.1542/peds.2006-3778.
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Estimating severe coccidioidomycosis in California.估算加利福尼亚州的重症球孢子菌病情况。
Emerg Infect Dis. 2007 Jul;13(7):1087-90. doi: 10.3201/eid1307.061480.
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Epidemiology of Acute Coccidioidomycosis with Erythema Nodosum ("San Joaquin" or "Valley Fever").伴有结节性红斑的急性球孢子菌病(“圣华金热”或“山谷热”)的流行病学
Am J Public Health Nations Health. 1940 Jun;30(6):600-11. doi: 10.2105/ajph.30.6.600.
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The KIDSCREEN-27 quality of life measure for children and adolescents: psychometric results from a cross-cultural survey in 13 European countries.儿童青少年生活质量量表KIDSCREEN - 27:13个欧洲国家跨文化调查的心理测量结果
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Coccidioidomycosis: changing perceptions and creating opportunities for its control.球孢子菌病:观念的转变与控制该病的机遇
Ann N Y Acad Sci. 2007 Sep;1111:1-18. doi: 10.1196/annals.1406.041. Epub 2007 Mar 7.