Gaab Erin Mary, Naeem Fouzia
Health Sciences Research Institute, University of California, Merced, CA 95343, USA.
Valley Children's Hospital, 9300 Valley Children's Pl, Madera, CA 93636, USA.
Healthcare (Basel). 2015 Aug 28;3(3):775-95. doi: 10.3390/healthcare3030775.
Research investigating the effects of coccidioidomycosis (valley fever) on children and the psychosocial implications of this disease in general is lacking. This study reviews what is known about pediatric coccidioidomycosis patients. It documents the psychological functioning, quality of life, and illness perceptions of a sample of coccidioidomycosis patient families. Primary caregivers of pediatric patients and patients from a major hospital in the San Joaquin Valley of California were interviewed regarding their perceptions of disease detection, access to care and the patient/family experience.
关于球孢子菌病(山谷热)对儿童的影响以及该疾病总体上的社会心理影响的研究尚缺。本研究回顾了关于小儿球孢子菌病患者的已知情况。它记录了一组球孢子菌病患者家庭的心理功能、生活质量和疾病认知。针对加利福尼亚州圣华金谷一家主要医院的儿科患者的主要护理人员和患者,就他们对疾病检测、获得护理的机会以及患者/家庭经历的看法进行了访谈。