Patel Darpan I, Winkler Paula, Botello Jorge, Villarreal Jocelin, Puga Frank
Department of Health Restoration and Care Systems Management, School of Nursing, University of Texas Health Science Center at San Antonio, San Antonio, USA; Cancer Therapy and Research Center, University of Texas Health Science Center at San Antonio, San Antonio, USA.
South Central Area Health Education Center, Center for South Texas Programs University of Texas Health Science Center at San Antonio, San Antonio, USA.
Patient Educ Couns. 2016 Dec;99(12):2087-2090. doi: 10.1016/j.pec.2016.07.013. Epub 2016 Jul 5.
To describe the effectiveness of engaging patient partners as "citizen scientists" in the research process to boost patient centered outcomes research in underrepresented populations.
Translational Advisory Boards in South Texas have effectively collaborated with University researchers to develop community-based patient centered research. Here we describe innovative approaches in research to engage patients and offer practical methods to enhance partnerships between patients and researchers to facilitate patient engagement.
Three health issues identified by the TABs were diabetes, obesity and teen pregnancy Examples of other community inspired research topics include air and water quality, methicillin-resistant staphylococcus aureus, intimate partner violence, chronic pain, and human papilloma virus and hepatitis C vaccinations.
Patient engagement of underrepresented populations is inverse to the vast disparities they experience. In order to adequately address our nation's deficits in providing equitable healthcare, we must fully integrate disparate partners into the research process. By engaging community champions, academic health centers can fully integrate meaningful interventions on topics of interest to the catchment area in which they serve.
These lessons can be used in developing local and regional collaborations across the country to boost active participation of patient stakeholder in PCOR to reduce healthcare disparities and improve our healthcare systems.
描述让患者伙伴作为“公民科学家”参与研究过程，以促进在代表性不足人群中开展以患者为中心的结果研究的有效性。
南德克萨斯州的转化咨询委员会已有效地与大学研究人员合作，开展基于社区的以患者为中心的研究。在此，我们描述研究中让患者参与的创新方法，并提供增强患者与研究人员之间伙伴关系以促进患者参与的实用方法。
咨询委员会确定的三个健康问题是糖尿病、肥胖症和青少年怀孕。其他受社区启发的研究主题示例包括空气和水质、耐甲氧西林金黄色葡萄球菌、亲密伴侣暴力、慢性疼痛以及人乳头瘤病毒和丙型肝炎疫苗接种。
代表性不足人群的患者参与度与他们所经历的巨大差异呈反比。为了充分解决我国在提供公平医疗保健方面的不足，我们必须将不同的伙伴充分纳入研究过程。通过让社区倡导者参与，学术健康中心可以将针对其服务集水区感兴趣主题的有意义干预措施充分整合进来。
这些经验教训可用于在全国范围内开展地方和区域合作，以促进患者利益相关者积极参与以患者为中心的结果研究，减少医疗保健差距并改善我们的医疗系统。
