欧洲成人囊性纤维化护理的局限性：护理中心调查结果
Limitations to providing adult cystic fibrosis care in Europe: Results of a care centre survey.
作者信息
Madge Susan, Bell Scott C, Burgel Pierre-Régis, De Rijcke Karleen, Blasi Francesco, Elborn J Stuart
机构信息
Department of Cystic Fibrosis, Royal Brompton Hospital, London, UK.
Department of Thoracic Medicine, The Prince Charles Hospital, Brisbane, Australia; Lung Bacteria Group, QIMR Berghofer Medical Research Institute, Brisbane, Australia; School of Medicine, University of Queensland, Brisbane, Australia.
出版信息
J Cyst Fibros. 2017 Jan;16(1):85-88. doi: 10.1016/j.jcf.2016.07.001. Epub 2016 Jul 26.
BACKGROUND
There are a growing number of adults in Europe with a projected increase of 75% over the next decade. There is concern that provision of care will not be sufficient to meet needs. We aimed to establish the level of CF service throughout Europe.
METHODS
An online survey designed by clinicians and patient representatives to explore level of service.
RESULTS
Training opportunities for clinicians and resources (physical and manpower) to provide care to adults with CF are limited in Europe. Although specific adult CF care has been identified, teams continue to be supported by paediatric colleagues and many adults are still being admitted to paediatric wards. In some centres, service delivery, particularly infection control and access to some CF medication is insufficient and in many places poor personnel resources limits access to comprehensive multidisciplinary teams.
CONCLUSIONS
This survey shows an urgent need for the development of resources for adult CF care, in both physical space and appropriately trained clinicians.
背景
欧洲成年人数量不断增加，预计未来十年将增长75%。人们担心医疗服务的提供将不足以满足需求。我们旨在确定整个欧洲的囊性纤维化（CF）服务水平。
方法
由临床医生和患者代表设计的一项在线调查，以探索服务水平。
结果
在欧洲，临床医生的培训机会以及为成年CF患者提供护理的资源（物力和人力）有限。尽管已经确定了针对成年CF患者的特定护理，但团队仍由儿科同事提供支持，许多成年人仍被收治到儿科病房。在一些中心，服务提供，尤其是感染控制和某些CF药物的获取不足，而且在许多地方，人员资源匮乏限制了获得综合多学科团队护理的机会。
结论
这项调查表明，迫切需要在物理空间和训练有素的临床医生方面开发成年CF护理资源。
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