Farahnik Benjamin, Nakamura Mio, Singh Rasnik K, Abrouk Michael, Zhu Tian Hao, Lee Kristina M, Jose Margareth V, DaLovisio Renee, Koo John, Bhutani Tina, Liao Wilson
College of Medicine, University of Vermont, Burlington, VT, USA.
Department of Dermatology, Psoriasis and Skin Treatment Center, University of California-San Francisco, San Francisco, CA, USA.
Dermatol Ther (Heidelb). 2016 Sep;6(3):315-24. doi: 10.1007/s13555-016-0130-9. Epub 2016 Jul 29.
PUVA treatment is photochemotherapy for psoriasis that combines psoralen with UVA radiation. Although PUVA is a very effective treatment option for psoriasis, there is an absence of patient resources explaining and demonstrating the process of PUVA. Studies have shown that patients who viewed videos explaining the treatment procedures for various medical conditions had a greater understanding of their treatment and were more active participants in their health.
To present a freely available online guide and video on PUVA treatment designed for patient education on PUVA.
The PUVA treatment protocol used at the University of California-San Francisco Psoriasis and Skin Treatment Center as well as available information from the literature was reviewed to design a comprehensive guide for patients receiving PUVA treatment.
We created a printable guide and video resource that reviews the benefits and risks of PUVA, discusses the three types of PUVA (hand-foot soak, full body soak, and systemic), demonstrates the PUVA process, and provides practical tips for safe use.
Online media and video delivers material in a way that is flexible and often familiar to patients. This new format is beneficial for prospective patients planning to undergo PUVA treatment, health-care providers, and trainees who want to learn more about this treatment.
补骨脂素联合紫外线A（PUVA）疗法是一种用于治疗银屑病的光化学疗法，它将补骨脂素与紫外线A辐射相结合。尽管PUVA是治疗银屑病的一种非常有效的方法，但目前缺乏向患者解释和展示PUVA治疗过程的资源。研究表明，观看过解释各种医疗状况治疗程序视频的患者对其治疗有更深入的了解，并且在自身健康方面是更积极的参与者。
提供一个免费的在线指南和视频，用于对患者进行PUVA治疗相关教育。
对加利福尼亚大学旧金山分校银屑病与皮肤治疗中心使用的PUVA治疗方案以及文献中的可用信息进行了回顾，以设计一份针对接受PUVA治疗患者的综合指南。
我们创建了一个可打印的指南和视频资源，该资源回顾了PUVA的益处和风险，讨论了三种PUVA类型（手足浸泡、全身浸泡和系统性），展示了PUVA治疗过程，并提供了安全使用的实用提示。
在线媒体和视频以一种灵活且患者通常熟悉的方式提供资料。这种新形式对计划接受PUVA治疗的潜在患者、医疗保健提供者以及想要更多了解该治疗方法的实习生有益。
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