缩小差距：支持患者住院后向自我管理的过渡。
Closing the Gap: Supporting Patients' Transition to Self-Management after Hospitalization.
作者信息
Pollack Ari H, Backonja Uba, Miller Andrew D, Mishra Sonali R, Khelifi Maher, Kendall Logan, Pratt Wanda
机构信息
Department of Pediatrics, School of Medicine, University of Washington, Seattle, WA, USA; Division of Nephrology, Seattle Children's Hospital, Seattle, WA, USA.
Biomedical and Health Informatics, University of Washington, Seattle, WA, USA.
出版信息
Proc SIGCHI Conf Hum Factor Comput Syst. 2016 May;2016:5324-5336. doi: 10.1145/2858036.2858240.
Patients going home after a hospitalization face many challenges. This transition period exposes patients to unnecessary risks related to inadequate preparation prior to leaving the hospital, potentially leading to errors and patient harm. Although patients engaging in self-management have better health outcomes and increased self-efficacy, little is known about the processes in place to support and develop these skills for patients leaving the hospital. Through qualitative interviews and observations of 28 patients during and after their hospitalizations, we explore the challenges they face transitioning from hospital care to self-management. We identify three key elements in this process: knowledge, resources, and self-efficacy. We describe how both system and individual factors contribute to breakdowns leading to ineffective patient management. This work expands our understanding of the unique challenges faced by patients during this difficult transition and uncovers important design opportunities for supporting crucial yet unmet patient needs.
出院后的患者面临诸多挑战。这一过渡阶段使患者面临因出院前准备不足而产生的不必要风险，可能导致失误和对患者的伤害。尽管进行自我管理的患者有更好的健康结果且自我效能感增强，但对于支持和培养出院患者这些技能的现有流程却知之甚少。通过对28名患者在住院期间及出院后的定性访谈和观察，我们探讨了他们从医院护理过渡到自我管理所面临的挑战。我们确定了这一过程中的三个关键要素：知识、资源和自我效能感。我们描述了系统和个体因素如何导致管理不善，进而造成患者管理无效。这项工作拓展了我们对患者在这一艰难过渡期间所面临独特挑战的理解，并揭示了支持关键但未得到满足的患者需求的重要设计机会。
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