Janssen Anna, Shaw Tim, Nagrial Adnan, Pene Christopher, Rabbets Melanie, Carlino Matteo, Zachulski Clare, Phillips Jane, Birnbaum Robert, Gandhi Tejal, Harnett Paul
Research in Implementation Science and eHealth, Faculty of Health Sciences, University of Sydney, Sydney, Australia.
JMIR Res Protoc. 2016 Aug 8;5(3):e147. doi: 10.2196/resprot.5547.
Improving patient care for individuals with lung cancer is a priority due to the increasing burden of the disease globally. One way this can be done is by improving patient self-management capabilities through increasing their self-efficacy. This can improve positive outcomes for patients with chronic conditions and increase their ability to manage the challenges of such illnesses. Unfortunately, patients with chronic conditions often struggle to travel far from home to engage with patient education events, a common means of improving self-efficacy. The development of more accessible tools for improving patient self-efficacy is required to increase quality of life for patients with chronic conditions.
To evaluate the feasibility of delivering symptom identification and management information to patients with advanced lung cancer using an online program.
This article describes a pre-post test study to evaluate a Qstream online learning platform to improve patient self-efficacy for managing advanced lung cancer symptoms. Undertaking this program should increase participant knowledge about the side-effects they may experience as a result of their treatment and in turn increase help-seeking behavior and self-efficacy for the participant cohort. Quantitative data collected by the Qstream platform on the completion rates of participants will be used as a tool to evaluate the intervention. Additionally, validated scales will be used to collect data on patient self-efficacy. Qualitative data will also be collected via an exit survey and thematic content analysis of semi-structured interviews.
The research is in the preliminary stages but thus far a protocol has been approved in support of the project. Additionally, advisory committee members have been identified and initial meetings have been undertaken.
Development of new approaches for increasing patient understanding of their care is important to ensure high quality care continues to be delivered in the clinical setting.
由于全球肺癌疾病负担日益加重，改善肺癌患者的护理成为当务之急。实现这一目标的一种方法是通过提高患者的自我效能感来增强其自我管理能力。这可以改善慢性病患者的积极预后，并提高他们应对此类疾病挑战的能力。不幸的是，慢性病患者常常难以离家远行参加患者教育活动，而这是提高自我效能感的常见方式。因此，需要开发更易获取的工具来提高患者的自我效能感，以提升慢性病患者的生活质量。
评估使用在线程序向晚期肺癌患者提供症状识别与管理信息的可行性。
本文描述了一项前后测试研究，以评估Qstream在线学习平台对提高晚期肺癌患者症状管理自我效能感的效果。参与该项目应能增加参与者对治疗可能产生的副作用的了解，进而增加该参与者群体的求助行为和自我效能感。Qstream平台收集的关于参与者完成率的定量数据将用作评估干预措施的工具。此外，还将使用经过验证的量表收集患者自我效能感的数据。定性数据也将通过退出调查和对半结构化访谈的主题内容分析来收集。
该研究尚处于初步阶段，但到目前为止，一项方案已获批准以支持该项目。此外，已确定咨询委员会成员并召开了首次会议。
开发新方法以提高患者对自身护理的理解对于确保临床环境中持续提供高质量护理非常重要。
