医疗保健的转变：我们能从囊性纤维化的治疗经验中学到什么。

Transitions in Health Care: What Can We Learn from Our Experience with Cystic Fibrosis.

作者信息

West Natalie E, Mogayzel Peter J

机构信息

Division of Pulmonary and Critical Care Medicine, Johns Hopkins University, 1830 East Monument Street, 5th Floor, Baltimore, MD 21205, USA.

Department of Pediatrics, Cystic Fibrosis Center, Johns Hopkins Cystic Fibrosis Center, 200 North Wolfe Street, Rubenstein Child Health Building #3053, Baltimore, MD 21287-2533, USA.

出版信息

Pediatr Clin North Am. 2016 Oct;63(5):887-97. doi: 10.1016/j.pcl.2016.06.010.

DOI:10.1016/j.pcl.2016.06.010

PMID:27565366

Abstract

Numerous individuals with chronic disease age into adulthood each year, necessitating transition from a pediatric to an adult medical care team. Transition should start early in adolescence and occur gradually over years, preparing the individual for the transfer to the adult team. Cystic fibrosis (CF) has a growing population of adults, as survival over the past several decades has increased. The CF Foundation has implemented guidelines for the transition process. The transition process for individuals with CF provides an example that could be adapted into other chronic disease populations, to provide a successful and meaningful transition into adult care.

摘要

每年都有许多患有慢性病的青少年步入成年期，这就需要从儿科医疗团队过渡到成人医疗团队。过渡应在青春期早期开始，并在数年内逐步进行，让患者为转至成人医疗团队做好准备。随着过去几十年生存率的提高，囊性纤维化（CF）成年患者群体不断壮大。囊性纤维化基金会已实施了有关过渡过程的指导方针。囊性纤维化患者的过渡过程提供了一个范例，可应用于其他慢性病群体，以实现向成人护理的成功且有意义的过渡。