囊性纤维化的照护转变：经验教训与未来方向
Cystic Fibrosis Transitions of Care: Lessons Learned and Future Directions for Cystic Fibrosis.
作者信息
Okumura Megumi J, Kleinhenz Mary Ellen
机构信息
Division of General Pediatrics, University of California, San Francisco, 3333 California Street, Suite 245, San Francisco, CA 94118, USA; Division of General Internal Medicine, University of California, San Francisco, 3333 California Street, Suite 245, San Francisco, CA 94118, USA; Philip R. Lee Institute for Health Policy Studies, University of California, San Francisco, 3333 California Street, STE 265, San Francisco, CA 94118, USA.
Division of Pulmonary, Critical Care, Allergy and Sleep Medicine, Department of Internal Medicine, University of California, San Francisco, 400 Parnassus Avenue, San Francisco, CA 94143-0359, USA.
出版信息
Clin Chest Med. 2016 Mar;37(1):119-26. doi: 10.1016/j.ccm.2015.11.007. Epub 2015 Dec 23.
Advances in cystic fibrosis (CF) care transformed the condition from one considered lethal by age 7 into a chronic illness (median lifespan, >40 years). With the growing numbers of adults with CF voicing their preference for care in age appropriate settings, the CF community met the challenge by developing an adult-focused care system modeled on the highly successful pediatric CF centers. Adult CF programs ensure lifelong CF specialty care. Preparation for transfer occurs in a process of "transition." This article reviews progress in transition-related care and provides recommendations for research and clinical practice to improve the transition process.
囊性纤维化（CF）护理的进展将这种疾病从一种被认为在7岁前致命的疾病转变为一种慢性病（中位寿命>40岁）。随着越来越多的成年CF患者表达他们希望在适合其年龄的环境中接受护理的意愿，CF领域通过建立一个以高度成功的儿科CF中心为蓝本、以成年人为重点的护理系统来应对这一挑战。成人CF项目可确保终身的CF专科护理。在“过渡”过程中会为转诊做准备。本文回顾了与过渡相关护理的进展，并为改善过渡过程的研究和临床实践提供建议。
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