Lindgren Anna, Dunberger G, Enblom A
Division of Physiotherapy, Department of Medical and Health Sciences, Linköping University, 58183, Linköping, Sweden.
Department of Health Care Sciences, Ersta Sköndal University College, Stockholm, Sweden.
Support Care Cancer. 2017 Jan;25(1):157-166. doi: 10.1007/s00520-016-3394-9. Epub 2016 Sep 5.
The purpose of the present study is to describe how gynaecological cancer survivors (GCS) experience incontinence in relation to quality of life, their possibilities for physical activity and exercise and their perceptions and experiences of pelvic floor muscle training.
This qualitative interview content analysis study included 13 women (48-82 age) with urinary (n = 10) or faecal (n = 3) incontinence after radiation therapy (n = 2), surgery (n = 5) and surgery and radiation therapy (n = 6) for gynaecological cancer, 0.5-21 years ago.
Symptoms related to incontinence and restrictions in daily activities reduced physical quality of life. Emotions related to incontinence reduced psychological quality of life and social and existential quality of life, due to restrictions in activity and feelings of exclusion. Practical and mental strategies for maintaining quality of life were described, such as always bringing a change of clothes and accepting the situation. Possibilities for sexual and physical activity as well as exercise were also restricted by incontinence. The women had little or no experience of pelvic floor muscle training but have a positive attitude towards trying it. They also described a lack of information about the risk of incontinence. The women were willing to spend both money and time on an effective treatment for their incontinence. Nine out of 10 were willing to spend at least 7 h a week.
GCS experienced that incontinence reduced quality of life and limited possibilities for sexual and physical activity as well as exercise. Coping strategies, both practical and emotional, facilitated living with incontinence. The women had a positive attitude towards pelvic floor muscle training. Lack of information had a negative impact on their way of dealing with the situation.
本研究旨在描述妇科癌症幸存者（GCS）如何体验与生活质量相关的失禁情况、她们进行体育活动和锻炼的可能性，以及她们对盆底肌训练的认知和体验。
这项定性访谈内容分析研究纳入了13名女性（年龄在48 - 82岁之间），她们在0.5至21年前因妇科癌症接受了放射治疗（n = 2）、手术（n = 5）以及手术和放射治疗（n = 6）后出现了尿失禁（n = 10）或粪失禁（n = 3）。
与失禁相关的症状和日常活动受限降低了身体生活质量。由于活动受限和被排斥感，与失禁相关的情绪降低了心理生活质量以及社会和生存生活质量。描述了维持生活质量的实际和心理策略，比如总是带上换洗衣物并接受现状。性活动、体育活动以及锻炼的可能性也因失禁而受到限制。这些女性对盆底肌训练几乎没有或完全没有经验，但对尝试训练持积极态度。她们还表示缺乏关于失禁风险的信息。这些女性愿意花费金钱和时间来寻求有效的失禁治疗方法。十分之九的人愿意每周至少花费7小时。
妇科癌症幸存者体验到失禁降低了生活质量，限制了性活动、体育活动以及锻炼的可能性。实际和情感方面的应对策略有助于应对失禁生活。这些女性对盆底肌训练持积极态度。信息缺乏对她们应对这种情况的方式产生了负面影响。
