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本文引用的文献

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The global burden of IBD: from 2015 to 2025.IBD 的全球负担:2015 年至 2025 年。
Nat Rev Gastroenterol Hepatol. 2015 Dec;12(12):720-7. doi: 10.1038/nrgastro.2015.150. Epub 2015 Sep 1.
2
Structure and content components of self-management interventions that improve health-related quality of life in people with inflammatory bowel disease: a systematic review, meta-analysis and meta-regression.改善炎症性肠病患者健康相关生活质量的自我管理干预措施的结构和内容组成部分:一项系统评价、荟萃分析和荟萃回归分析
J Clin Nurs. 2015 Oct;24(19-20):2695-709. doi: 10.1111/jocn.12851. Epub 2015 Aug 12.
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Transition experience of young adults with inflammatory bowel diseases (IBD): a mixed methods study.炎症性肠病(IBD)青年患者的过渡经历:一项混合方法研究。
Child Care Health Dev. 2015 Sep;41(5):755-61. doi: 10.1111/cch.12213. Epub 2014 Nov 6.
4
Coping with college and inflammatory bowel disease: implications for clinical guidance and support.应对大学学习与炎症性肠病:对临床指导与支持的启示
Inflamm Bowel Dis. 2014 Sep;20(9):1618-27. doi: 10.1097/MIB.0000000000000124.
5
Exploring health-related quality of life and social functioning in adolescents with inflammatory bowel diseases after attending camp oasis and participating in a Facebook group.在参加绿洲营并加入一个脸书群组后,对炎症性肠病青少年的健康相关生活质量和社会功能进行探索。
Inflamm Bowel Dis. 2014 Sep;20(9):1611-7. doi: 10.1097/MIB.0000000000000120.
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Stigma, deviance and morality in young adults' accounts of inflammatory bowel disease.青少年炎症性肠病患者叙述中的污名、偏差行为与道德观念
Sociol Health Illn. 2014 Sep;36(7):1020-36. doi: 10.1111/1467-9566.12148. Epub 2014 Jun 3.
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Preparing adolescents with chronic disease for transition to adult care: a technology program.为患有慢性病的青少年做好向成人护理过渡的准备:一项技术方案。
Pediatrics. 2014 Jun;133(6):e1639-46. doi: 10.1542/peds.2013-2830. Epub 2014 May 19.
8
Health care provider-delivered adherence promotion interventions: a meta-analysis.卫生保健提供者提供的依从性促进干预措施:一项荟萃分析。
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E-mail communication in the management of gastroenterology patients: a review.电子邮件在胃肠病患者管理中的应用:综述。
Can J Gastroenterol Hepatol. 2014 Mar;28(3):161-5. doi: 10.1155/2014/764538.
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Benefits of attending a summer camp for children with inflammatory bowel disease.参加炎症性肠病患儿夏令营的益处。
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炎症性肠病患者的自我管理:策略、结果及融入临床护理

Self-management in patients with inflammatory bowel disease: strategies, outcomes, and integration into clinical care.

作者信息

Plevinsky Jill M, Greenley Rachel N, Fishman Laurie N

机构信息

Department of Psychology, Rosalind Franklin University of Medicine and Science, North Chicago, IL.

Department of Gastroenterology, Boston Children's Hospital, Harvard Medical School, Boston, MA, USA.

出版信息

Clin Exp Gastroenterol. 2016 Aug 23;9:259-67. doi: 10.2147/CEG.S106302. eCollection 2016.

DOI:10.2147/CEG.S106302
PMID:27601930
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC5003515/
Abstract

Self-management, including medication adherence, is associated with improved health and outcomes for patients with inflammatory bowel disease. The concept of self-management is complex, but can be divided into those aspects that involve the individual patient, those that involve the provider-patient relationship, and those that encompass the social environment. At the individual level, enhancing problem-solving skills and self-efficacy have both been shown to improve self-management tasks, particularly adherence to treatment. However, it is critical to consider these domains from a lifespan perspective because these processes by which self-management can be improved are distinct for children, adolescents, young adults, and adults. A particular emphasis is placed on strategies to improve self-management of older adolescents and young adults as they transition from pediatric to adult providers. The review concludes with recommendations for providers, including rationale and techniques for assessing and promoting patient self-efficacy, encouraging the development of problem-solving skills, improving the patient-provider relationship, and enhancing social support. Providers are encouraged to utilize elements of problem-solving skills training, engage in collaborative relationships with their patients, and offer their patients recommendations for how to increase the quality of their social support networks as ways of increasing overall self-management.

摘要

自我管理,包括药物依从性,与炎症性肠病患者的健康改善及预后相关。自我管理的概念很复杂,但可分为涉及个体患者的方面、涉及医患关系的方面以及涵盖社会环境的方面。在个体层面,提高解决问题的能力和自我效能都已被证明能改善自我管理任务,尤其是治疗依从性。然而,从生命周期的角度考虑这些领域至关重要,因为改善自我管理的这些过程在儿童、青少年、青年和成年人中是不同的。特别强调改善年长青少年和青年自我管理的策略,因为他们正从儿科医疗服务过渡到成人医疗服务。该综述最后为医疗服务提供者提出了建议,包括评估和提高患者自我效能的基本原理和技巧、鼓励解决问题能力的发展、改善医患关系以及增强社会支持。鼓励医疗服务提供者利用解决问题技能培训的要素,与患者建立合作关系,并为患者提供如何提高其社会支持网络质量的建议,以此作为提高整体自我管理的方法。